Sleepless Nights

Month: September 2008

Ranting

I would just like to take a moment out from my busy Sunday to declare my hatred of the new Mozilla. It freezes. It fucks up. It randomly encounters errors and closes.

Dear makers of Mozilla, making your browser prettier DOES NOT make us overlook the issues it has. Bring out a freaking patch to fix it already!

I also hate email programs. Specifically Microsoft Outlook Express (2003) which decided this morning to randomly NOT FUCKING WORK. Sure, I might have changed anti-virus programs, but how the hell does that affect my emails? And my email program?

Also, if the repair option in the setup continues to freeze, don’t delude yourself that anything is going to be easy.

I have uninstalled everything and I am starting from scratch. Someone hold me.

Also, dear Vista. I have never had any problems with you, but your backup/restore centre really sucks. I don’t like it. Seriously, telling me there was an error when I was on the VERY LAST DISK? So not cool.

So to summerise. I have spent all day on my computer, getting approximately nothing done and finding more things that need doing with every minute.

If I don’t reply to your emails, they got lost in cyber space and I didn’t receive them. Send help instead.

xx

****

Updated:

My email program is now working. Office is reinstalled (5th try lucky). I am going to bed.

I’m still shitty with Mozilla. And Sitemeter.

Oh and useless fact #102, my dog eats carrots. Raw ones.

September 14, 2008
Well It’s Official

I seem to be having a baby!

Oh wait, that isn’t the news you were waiting for? You want to know the sex of the baby?

Well, how about a photo first?

See, isn’t the little one gorgeous?

So gorgeous. Okay, I might be a little biased though.

We are having…..

….. A boy!

And it’s a good thing we wanted to know the sex, because the baby wasn’t shy in the slightest. Hell, I could have told you we were having a boy after 5 minutes in the scan he was that eager to show off his bits.

No denying it, there is a little boy in there.

Oh and we have to have a stern talk to him, because at this point in time, he is firmly breech, bouncing around squashing my bladder. Ah well, he has plenty of time to turn upside down. Don’t you little one…

September 11, 2008
21 Weeks

Tomorrow I will be 21 weeks pregnant. Also tomorrow, I have my anatomy scan which should *hopefully* let us know what sex the baby is.

Once we know the sex, then Nat and I can start discussing fun things like names. Sorry about the quality of the photo, the mirror is covered with dust and dirty finger prints. A perfect example of my entire house actually.

This pregnancy makes me nervous actually. Knowing that at the end of this all I should (hopefully) have a second child at home who needs me right! now! mummy! along with Amy.

I know that I shouldn’t worry, because hell, things will work out eventually – I might not shower, or eat anything that doesn’t come with instructions to stick in the oven and heat, or use the toilet, but things will work out.

I am worried about things like; how am I going to manage breastfeeding in public? I have NO qualms about breastfeeding in public (and I refuse to cover the baby’s head, would you eat in an airless tent? No, me either), but I am nervous about how to go about breastfeeding in public with Amy about.

Amy gets bored very easily and I can’t see her wanting to sit still for 30 minutes while I feed her sibling.

So, my other option would be to invest in a sling that I can breastfeed in. Only, because I didn’t use a sling with Amy (yes, you can call me stupid, I wished for one ALOT) I have no idea what works with newborn babies.

Advice? Sling recommendations? Anything?

Sigh.

Anyway, feel free to tell me what sex you think the baby is. I will be back tomorrow evening to let you all know what the scan said.

September 10, 2008
Thankyou!

Tiff emailed me a few moments ago.

The paediatrician rang her.

Ivy has been approved for her IVIG.

She will be admitted to hospital at 10.30am tomorrow morning for her first round of treatment.

All of Ivy’s doctors had seen the petition, so they fast tracked the decision.

Thankyou to everyone who blogged about it. Thankyou to the 1100+ people who signed the petition. Thankyou so SO much to everyone who banded together to help.

It has all been so worth it to see her get the treatment she needs to be a normal little girl.

Thankyou from the bottom of my heart for helping. Just, thankyou.

September 9, 2008
Astounded

You can find the post about Ivy here.

Thankyou from the bottom of my heart to everyone who has reposted or blogged about Ivy. If I am so touched and thrilled, I cannot imagine how Tiff and David are feeling.

The list of people who have helped to spread the word so far.

Riayn @ Rainbow of Chaos
Jen @ Semantically Driven
Jothemama @ Infantasia
Hotmamaia @ The Pittsburgh Deli
Rikki @ Boogers, Kisses and Spilled Milk
WWS @ Walking With Scissors
Sarah @ Take it one gigantic, earth-shattering crisis at a time
Mad Woman @ Mind of a Mad Woman
Tash @ Fabric of Life
Lightening @ Lightening Online
Old Knudsen @ Old Bitter Balls
Patsy @ Ramblings From *While You’re Up*
Lou @ LouCeel
Maggie @ Maggie’s Mind
Amber @ Schmidt Family Blog
Lotus @ Sarcastic Mom
Barbara @ Barbara’s 366
Ree @ Hotfessional
I am a Tornado @ From Here to There and Everywhere
New Rose @ Draco’s Rose
Kate @ Picklebums
Feather Nester @ Feather Nester
Kat @ Just Kat Stuff
Martin @ Xbox4NappyRash
Badness Jones @ Badness Jones
Anne @ Met 5 Down Under
Hyphen Mama @ Mommy Needs 5 Minutes
Witchypoo @ Psychic Geek
Kim @ Frogpondsrock
Angella @ Dutchblitz
Marylin @ A Little Space For Me
Fe @ Fe – A Life
Sarah @ Redefining Perfect
Laurakim @ Ramblings of an Harrassed Single Mom
Jientje @ Heaven in Belgium
Myst @ From the Myst
Cellobella @ Red Sultana
Cat @ Fitcatblog
MiscMum @ Miscellaneous Adventures of an Aussie Mum
Lilacspecs @ Lilac Coloured Glasses
Sherry @ It’s Sherendipity
Jenty @ Jenty’s Ramblings
Missy B @ Brockmann Adventures
Holly @ Are you in the Beyond? I think you are.
Jenni @ Oscarelli
Mrs. C @ Homeschool and Etc
Jen @ A2EatWrite
Suzie @ Up The Hill Backwards
Crystal @ A Little Slice of Me
Angel @ Passionate Chaos
Jeanie @ Jeanie in Paradise
Eric @ Ruminations of a Small Town Mountain Boy
Alexa @ Flotsam
Mr. Lady @ Whiskey in my Sippy Cup
Gina @ Stumbling and Bumbling
Desi @ Desi’s Two Cents

If I have forgotten anyone, let me know and I will add you to the list.

Also, the Lady who calls herself Speakneasy who posted about this on an Ebay Forum.
KareyM from Mackin Ink who added this to Kirtsy
SarahJo who posted on CafeMom about it.

Thankyou. You guys are amazing.

****

The signature count as I write this is 611. Still, we need more. We need these doctors to sit up and take notice.

****

UPDATE:

I spoke to Tiff (Ivy’s Mum) this morning (via email) and she mentioned that she had received a series of emails from the blistering Specialist that Ivy saw way back in January. Someone had forwarded this doctor the post about Ivy.

She has given Tiff some ways to push the IVIG application and she will be speaking to Ivy’s Paediatrician on Monday about it.

We also got a comment from Molly, who is the CEO of the International Pemphigus Foundation. She says,

Dear Ivy and your family:

I am the CEO of the International Pemphigus Foundation. We provide personal support through Peer Support Counsellors and with forums and discussion groups worldwide to help people cope with the day to day as well as other lifestyle difficulties such as insurance, wound care, etc. Visit our web site at www.pemphigus.org for lots of information. If you click on the “Our Community” tab you can login and have access to all of our community support, including phone and email for a support network leader in Australia named Julian.

In addition, we have some resources that may be able to give you some scientific research evidence and publications to support your discussion for the need for IVIg medical coverage for Ivy. I probably have a contact for you to talk to in that regard as well if you want to send me an e-mail at Molly@pemphigus.org.

Finally, you’ll probably find a lot of support and encouragement if you sign on to the discussion group. I will post your blog entry there, as well as on my blog at CEO.pemphigus stunt work. Good luck to you all and keep in touch.

Comment was left on Barbara’s post. Thankyou so much to her for passing it on.

This CEO was the person who forwarded the post to the blistering Specialist. Said Specialist is on the board of the Pemphigus Foundation.

We have made some of the doctors listen to us, now we need to make them sit up and really take notice. Please, keep passing on the news about Ivy and get everyone you know to sign the petition.

This blogging community is amazing. I honestly just want to hug every single one of you.

Thankyou.

Updated again:

We made the front page of the petition site where Ivy’s petition is hosted. It shows the top 10 most active petitions, Ivy’s is #10. Please don’t give up now.

September 6, 2008