Apparently, my baby sleeps too much. Don’t you wish you had my problems?

by Veronica on September 5, 2012

in Life

Ah Internet, so much has happened since I last wrote here. We brought Evelyn into emergency yesterday morning, knowing that the Paeds team had been appraised of her condition and were expecting her arrival. By 5pm she had been transferred up to the high dependency paediatric ward, for observation and testing.

So far she’s had lots of blood drawn and an EEG, which have all come back normal.

The concerning thing at this stage is how much she is sleeping. I guess she’s averaging around 22 hours of sleep a day, which is ridiculous when you consider this blog is called Sleepless Nights.

Now we have to start testing for the really rare things that can cause seizures and sleepiness. She will have an MRI in the next day or so, as well as a lumbar puncture and another whole lot bloods. There will be testing for chromosomal abnormalities, as well as for rare metabolic disorders.

We’ve got hoof beats and we’re now looking for zebras.

She’ll be in the paediatric ward for another few days, while her doctors here liase with the paediatric neurologists in Melbourne to get their opinion on a course of action for Evelyn, regarding possible medications and treatment.

Until then, we’re waiting. Waiting for tests, for results, for Evelyn to stop sleeping quite so much and stop twitching.

Waiting.

Alison Dennehy September 5, 2012 at 5:59 pm

Oh, love. All good and positive thoughts being sent to you from me. I wish, I wish, I wish there was something I could to help. My tears will surely add to the weight of hope, love and good wishes you are already receiving. xxx

Louisa September 5, 2012 at 6:00 pm

Oh love, wishing there was something I could do or say to ease the worry. So very glad you are in good hands, sending loads of love and prayers your way. xx

Sarah @fignutmum September 5, 2012 at 6:02 pm

Oh hugs. I really hope they find an answer soon.
Thinking of you all.

Peskypixies September 5, 2012 at 6:03 pm

I was worried because you had been so quiet.

Hoping for some answers soon.

Lots of love

Sharon A. September 5, 2012 at 6:10 pm

I’m glad the doctors are on this for you. Wishing you some answers and good news very soon.

Kirsty @ My Home Truths September 5, 2012 at 6:12 pm

Thinking of you all – hope you get some answers and some help for Evelyn really soon.

Jess September 5, 2012 at 6:12 pm

Aww hun, all good thoughts and prayers come to Evelyn and your family xx

Susan @ Reading Upside Down September 5, 2012 at 6:22 pm

Thinking of you and your family. Hugs to you all as you wait for answers. Praying that the answers you receive will be ones that can be dealt with swiftly and successfully. xxx

Cat@jugglingact September 5, 2012 at 6:29 pm

Thinking of you all.

Debyl1 September 5, 2012 at 6:35 pm

Can only imagine how hard this all is for you all.Will be sending many good thoughts out to the universe for you.Warm supportive hugs.xx

dharawal September 5, 2012 at 7:06 pm

Oh love, thinking so many good thoughts for the little one.

Yvette Vignando September 5, 2012 at 7:36 pm

Wanting and wishing all to be well. hugs xxoo

Trish September 5, 2012 at 7:36 pm

Thinking of you , as you wait and no doubt worry more. I hope the answers are easy to fix.

Meegan MacQueen September 5, 2012 at 7:41 pm

When clicking “liked” I DONT like this at all…I dont LIKE that you have so much to bear…I dont LIKE that Evelyn is unwell, I dont LIKE that she has to endure so many tests. But I do LIKE the fact that you are there with her and being the super mumma bear that you are and I hope you get some answers soon xxx

sleepydwarf September 5, 2012 at 7:46 pm

Thinking of you xx

Becky from BeckyandJames.com September 5, 2012 at 7:48 pm

Oh! Thinking of you and your family and your beautiful girl. I hope you get answers soon x

river September 5, 2012 at 7:58 pm

Evelyn’s getting all her sleep out of the way now, so that once she’s mobile she can stay awake for two full years without even a nap. Babies are sneaky like that.

Seriously, I hope she’s fine, I hope all tests show something easily fixed.

Toni September 5, 2012 at 8:08 pm

My heart goes out to you, Veronica. It’s terrifying when there’s something ‘wrong’ with your baby. I’m going to ask my Christian friends to pray for Evelyn, and I’m sending you love and hugs and cups of tea. X

Shae September 5, 2012 at 8:11 pm

Oh Veronica. Big big love xoxo

Mrs Woog September 5, 2012 at 8:21 pm

Thinking nothing but positive thoughts xx

Carli September 5, 2012 at 8:23 pm

Thinking of you Veronica – hope you find some answers soon x

traceyb65 September 5, 2012 at 8:23 pm

so sorry Veronica, we went through a tough time with my oldest niece … who is now a beautiful happy 25 year old! hope it’s figured out and dealt with so Evelyn can return home and go about being a part of a beautiful family. xt

Marita September 5, 2012 at 9:17 pm

Oh Dear. I hope things start improving soon.

Sophia Grace September 5, 2012 at 9:47 pm

Sending love.

Susanne September 5, 2012 at 10:13 pm

Sorry to hear everything you’re going through, I hope they get to the bottom of this soon and get the little darling sorted. Best wishes x

Glowless September 5, 2012 at 10:21 pm

Sending all my love x

Christie-Childhood 101 September 5, 2012 at 11:09 pm

Sending best wishes and healing thoughts across the country to you and your gorgeous bub.

Alison September 5, 2012 at 11:16 pm

Thinking of you and Evelyn, and keeping all digits crossed that she’s okay.

Marylin September 5, 2012 at 11:45 pm

Oh sweetheart! I’ve been hiding from blogland for the last few days and I come back to this! I really hope there’s a treatable and known reason behind this for Ev’s sake and yours.
All our love xxx

Happy Elf Mom September 5, 2012 at 11:56 pm

They’re consulting with people in Melbourne? Surely that is not usual, is it? I hope they have answers soon and everything is ok at home in your absence.

Achelois September 6, 2012 at 2:45 am

Sending love and gentle hugs, thinking of you all and hope you have answers very very soon. xxxxx

Watershedd September 6, 2012 at 8:03 am

Hey, V. Glad you’ve got the process of diagnosis started and that the consultation with Melbourne has started. Baby jackets going in the mail today, finally. Email heading your way. X

K@DragonflyMumma September 6, 2012 at 9:39 am

Sending all our love, thoughts and positive healing vibes to you, your family and your precious little girl. All the best K xx

Leila September 6, 2012 at 10:19 am

Oh hun, i’m sending some positive thoughts to you and your princess (as well as the rest of the fam)

Geri Johnson September 6, 2012 at 10:27 am

Sending prayers and good thoughts your way – wish I could just lean over and give you hugs little mama!

Fee @ Oh Gorgeous Baby September 6, 2012 at 10:57 am

Thinking of you Veronica and Evelyn xx
I’m a bit out of the loop as to all that is happening with you girls as we are still dealing with stuff too post Jonty’s birth. We both should be home enjoying our babies instead of doing things like this 🙁
I hope the tests shine some light on the situation. I’m going to be with you girls in
spirit while I’m having my tests too.
Lots of love Fee xx

mrs d September 6, 2012 at 5:59 pm

My thoughts are with you all, big hugs xxx

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