Isaac

Isaac is watching Peppa Pig. I’m sure this would be fine, but he’s watched the same episode a dozen times already this morning and the way we’re going, even if I turn the computer off, he’ll be able to repeat it back to me word perfect.

I have high hopes for his future, with an obsessive nature and a memory like his. Maybe theatre, or tax accountant. I’m not quite sure yet.

I’m dealing with the Peppa Pig obsession by doing my very best to drown it out with music. This is probably not good parenting, but anything that keeps me sane is something worth pursuing.

Yesterday, I felt like killing my children.

Instead, I burst into tears and cried hard enough to make my nose bleed. Then I slammed the back door and cried some more, before going in to massacre the garden. Weeds died, tomato bushes were pulled and hung and everyone held their breath for a little bit.

I was okay, and when my children joined me 10 minutes later, they’d stopped whining and fighting with each other, and the urge to bang their heads together had passed.

Usually, things flow along nicely, autism or not, until something comes along to throw a spanner in the works. Five days of diarrhoea from Isaac* and an ear infection and some serious attitude from Amy, topped with never-ending morning sickness** and falling apart joints, PLUS cold weather and a dead duckling ***, well, it’s not always smooth sailing.

Autism is funny like that. Routines are kept, right up until the point in which they can’t be anymore, and then everything falls apart. Amy was angry that she couldn’t go to school and was stuck at home with her annoying little brother, while Isaac was annoyed that he wasn’t getting any free time away from his sister and both Nathan and I were annoyed that the children weren’t quite sick enough to lay down quietly, but were too sick to send outside to play.

Down came our house of cards.

This is how things work sometimes. This is how life works, sometimes. Everything is fine, right up until the point where it’s not.

We’ve reset things now, starting from the beginning again. Amy is back at school, Isaac is watching Peppa Pig on repeat and I got to eat breakfast this morning without anyone screaming and attached to my leg.

I think things are looking up.

* Laxative worked, we get to avoid hospital! Now we just wait to make sure the same problem doesn’t arise again.
** 17 weeks now and still feeling nauseous most of the time. No vomiting, because I’m still well medicated, but the meds have the lovely side effect of giving me a nearly permanent headache.
*** Inside duckling died. I have no idea why, it was fine at bedtime and dead in the morning. The children didn’t seem bothered. They’re very good at living in the moment.

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And that is why I have a headache today.

by Veronica on March 24, 2012

in Amy,Isaac

At 3am I was awoken by Amy coming into my bedroom. In her teensy tiny whiny voice that is guaranteed to set my nerves on edge, she declared that she was wide awake and hungry.

I am not at my best at three am, and that’s usually without being requested to make food. I told her to grab an apple and to go back to bed, immediately.

Amy is five and a half and she knows exactly where the fridge is. It’s shopping week this week and therefore, my fridge is full of things like yogurt, cheese slices, apples and carrots and the cupboard contains two different types of muesli bars – all of which she could have eaten, and not bothered me.

But instead, she needed an apple and she needed it sliced and despite slicing her own apples on any other day, she needed me to slice the apple for her.

I very nearly threw the apple at her head. Instead I sliced her off a piece, and sent her back to bed, with strict instructions to STAY THERE UNTIL MORNING.

A little before 7am, Isaac came into the bedroom.

“Mummy, you needa change me. I wee’d and it’s running down my legs.”

Oh. Right.

I changed him, made him breakfast, tucked him onto the couch, turned a movie on and went back to bed.

Only to find him in my bedroom two minutes later, melting down because I wouldn’t give him a jellybean.

That lasted an hour, long enough for Amy to wake up and continue her whining.

“I can’t make my own toast. YOU DO IT. I can’t find socks. Cut me an apple. Why can’t I pick up the duckling?”

I cut her an apple, told her to suck it up and make her own toast, made sure the duckling was safely tucked under my bed and went back to bed.

I think I slept for another 15 minutes, before Amy’s whining woke me up. Isaac was touching her, or looking at her, or something. I don’t even know what, but she had definitely forgotten how to speak like anything other than a baby.

It turns out that I can sleep through Isaac shouting. I can sleep through cupboards being climbed and cereal being poured. I can even sleep through the TV being turned up.

But I absolutely cannot sleep through whining.

And that is why I have a headache.

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Today we had the appointment with our new Paediatrician. You know, the one who comes highly recommended? The one who we probably ought to have been referred to eighteen months ago, but we’ll ignore that.

Firstly, I will say, he exceeded my expectations, in a big way. My expectations were low and my nerves were high, but he was fantastic. He read the letters from our old Paed and then asked us to tell him about Isaac.

And so we did.

We covered the EDS, the autism and finally, the bowel issues.

(Oh god, the bowel issues)

All said and done, through a chain of super lucky events – he managed to palpate Isaac’s stomach. This is something no other doctor has been able to do and our last paed didn’t bother to palpate for the last few appointments. Of course, Isaac didn’t let the old paed touch him, so there’s that.

Lo and behold, Isaac has a major bowel impaction, which is probably causing the leakage. His bowel is almost blocked, so therefore, the only poo getting around the blockage is liquid and leaking.

I’m not sure whether to laugh, or cry at this point.

The obstruction is much too large to pass all on its own, and so at this stage, our only option is to use as much medication as possible, to flood his bowel with water, to hopefully start dissolving the impaction.

Our two options at that point were whether we were going to do this at home over 7-10 days, or hospitalise Isaac with a nasal gastric tube and flush his system in 2-3 days. We’ve elected to try at home first (obviously), knowing that if it doesn’t work, we’re headed for the hospital.

And thus begins our week of poo hell.

Our instructions are to dose Isaac every day, until his bowel runs pretty clear and we can no longer feel the obstruction. I can feel the impaction myself and I would say it’s the size of my fist.

I guess we’re just lucky that nothing ruptured? Is that my bright side here?

I’m really pleased with how the new Paed treated us, how he spoke to Isaac and his plans for the future (which at this stage are “I have no idea, but I’m going to research EDS and bowel issues, see what has worked for other patients and I will have a plan in a fortnight when we talk again”), as well as his general knowledge of EDS and Autism. It’s really very nice to have a doctor that you can trust to be a doctor and FIX things, rather than having to deal with everything alone.

I’m just hoping and praying that the meds work and that we can break this impaction down and avoid a hospital stay.

And in the meantime, we medicate, hydrate and wait.

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Today was the school athletics carnival.

If you are a school mum, this should conjure up a good, decent shudder from you, because now you know the kind of day we’ve had.

Tassie broke out the strangely warm weather for us, which normally would be nice – but for a good running carnival, I prefer an air of frostiness with thick coats required. Not only does the cold encourage the children to run faster, in order to warm up, a good coat also provides extra padding for the ground and means that I don’t spend all morning fighting to get my kid to wear a hat.

Needless to say, races were run and presumably, enjoyed. There might have been a little complaining about a lack of ribbons, but “run faster then” was my best response along with “but you had fun, right?”.

And then there were sausages.

The lure of sausages was too great for Isaac, who dragged me down onto the oval, to stand in line at the BBQ stand, in the beating sun, while he wailed that the sausages weren’t happening fast enough. I’m sure that was appreciated by the women cooking.

Then we HAD to find his sister – dodging small children running everywhere and trying not to walk on the running track. Easy when you’re mum – less easy when you’re THREE and OPINIONATED and I NOT WALK THERE.

Finally, we found Amy, handed off her sausage and convinced her to come and sit in the shade with us for a bit.

That was the easy part.

The hard part was trying to drag a small child from one end of the school oval to the other AND up a hill, when he’s hot and tired, and determined that he needed to go in the other direction.

Eventually, after letting him trail behind us screaming, while I cheerily chirped “we’re leaving you behind, Isaac. You’d best walk a little bit, kiddo” to the amusement of the other mothers there (and the consternation of anyone who has a perfectly perfect child who never loses their shit), I picked him up like a sack of potatoes.

This was a brave move on my part, as he was dripping snot and spit by that point, while also waving around a sausage like a greasy stick.

Up the hill we went, with Isaac pretending to have no bones and exercising his vocal chords and Amy pretending to not know us.

Past the fashionistas (who earlier, had had OPINIONS about autism and narrowly avoided having pinecones chucked at their heads – and who also seemed to think that tying a magpie to a clothesline, taming it down and then CUTTING ITS TONGUE IN HALF would enable it to talk. It really does take all kinds…) who tutted at me like I was a terrible mother for letting my child scream and not being sympathetic.

Of course, by that time I had put Isaac down and was poking him in the back to keep him walking, before trying holding him under the arms and prodding him along with my knee. It was not my finest parenting moment, obviously.

Isaac threw himself on our bags sobbing about trees and toilets, before wiping snot all over himself and hiccuping a bit.

This is of course, when he declared he needed to use the toilet.

My son, who is decidedly not toilet trained, due to some medical issues, wanted to go to the freaking toilet, that was all the way up another hill. Nathan had gone in search of more sausages, and so I was entirely without backup, or anyone to watch our bags.

Trusting that the fashionistas in front of us would be too grossed out by the snotty tissues and general aura of Real Motherhood surrounding our bags, I figured that they wouldn’t nick my kindle and trudged up the hill, to take my son to the toilet, whereupon, NOTHING HAPPENED.

Are you surprised?

Eventually, after another meltdown over slide privileges and assorted nonsense (MY HANDS ARE DIIIIRITY), we elected to cut and run, stealing our daughter in the process.

Sure, she had another race to run, but by that point, we did not care.

Hot and miserable, we made our way to the car and the comfort of air conditioning, before declaring that Athletics Carnivals are obviously designed merely to torture as many people as possible in as little time as possible.

I am not the kind of parent who cheers on the sidelines – no. Instead I am looking at my watch, wondering when I can leave.

Not my finest parenting, at all.

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My children need a volume button

by Veronica on March 10, 2012

in Amy,Gotta Laugh,Isaac

This morning, I was woken by my children happily shouting at each other. On weekends, I usually ignore them for as long as possible before getting out of bed. This normally works – they’re old enough now to make their own breakfast without tipping out the entire box of cocoa and paddling in it.

I think surviving parenting for this long entitles me to sleep for an extra hour if I can manage it and so far, provided there are cartoons to watch, they’re not arguing with me.

This morning however, there was shouting. Lots of shouting. Happy shouting sure, but it was loud.

Most weekends I’d ignore it, until someone started to scream, but my uterus was pressing on my bladder and staying in bed seemed like a dangerous option.

There was nothing wrong with the kids, strangely enough. They were merely crashing trains into each other and shouting about the entire thing, while the train track stretched around the loungeroom and the matchbox cars lined up neatly, waiting their turn.

As the day has worn on, my children have gotten louder.

I keep poking Isaac, but I’m yet to find the off switch and Amy is vacillating between screeching happily and screaming in woe. I’m not sure on any given moment what is going to happen with her, she’s rather like a volcano that might decide to fall asleep, but is more likely to spew ash and lava everywhere.

In the middle of this, I sit, progressively getting more headachey and trying to contain the chaos.

Now as I try and write this, Isaac has just spilled an entire bowl of cereal and Amy, while I was dealing with Isaac, took the opportunity to quickly spoon sugar onto her yogurt.

She’s quick and quiet, that girl.

How much longer until bedtime?

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