Gate leave, man, it’s awesome. Last night after a long day in hospital, Evelyn and I came home and slept in our own bed. Despite still being in hospital, getting to go home every evening is saving my sanity.
We’re still getting into the routine of things. Eve had lost weight at admittance yesterday, and the speechie has noted a few things going on with her mouth when she eats, so hopefully a plan is on the way.
We’re probably going to repeat her swallow study, this time looking for what is going on further down her oesophagus, rather than just her swallow. Right now, Eve is complicated and we’re still feeling our way forward.
She’s asleep right now, after I walked miles up and down the corridors, with her in her pram. She’d refused to sleep in her cot, and I was grateful, so grateful,for not being tied to the ward, for being allowed to walk, for our ability to leave the climate controlled paeds ward.
That’s really all that is happening right now. I’m tired, and not looking forward to the rest of the week, but I’m hopeful that this will be the beginning of getting her issues sorted.
And you know, this morning she smeared an entire tub of pureed apple and blackcurrant all over herself, so that was also a bonus.
I’m 25 today.
Nathan delivered me a doughnut complete with candle this morning, and a cup of tea I didn’t make myself.
So far, it’s a good day.
If I wanted to get all introspective, I would point out that I’m now in my mid-twenties, and I’ve been blogging here since I was eighteen and a mother to one almost-toddler who never slept. My almost-toddler is now seven, opinionated, and awesome. Long term readers have seen me have another two children, all of us growing up.
Years of writing, collected here.
Happy Birthday me!
I bought a new camera body, as a balm for my shattered soul.
Or more likely, I bought a new camera body because my old one was having a hard time actually focusing, or taking crisp images, or rendering the colours properly. I’d clicked it out, and it was slowing down, frustrating me. Once I got frustrated, I just stopped picking it up and hello, there goes my creativity down the drain.
There was a frost this morning and I wandered around, taking photos, reminded of the fact that it had been months since I tried to take a proper photo.
I’m coming back.
I wrote my novel outline, mapping out each chapter. I sent it to two people, and then made Nathan read it. I’m working again, writing again, taking photos again.
Friday night, we shaved off most of my hair as part of The World’s Greatest Shave. Saturday morning, I tidied up the long ends so it’s a neat #4 cut. It’s COLD, Internet.
Ignore the grey. I’ll dye it pink or something next week.
I’ve raised $1265 so far for the Leukaemia Foundation, but there’s still time to donate if you’ve got a spare $5 in your bank account.
I am so grateful for hats right now. Leigh knitted me the lovely red hat I’m wearing up there and I’m currently wearing a hat that Sharon knitted for Mum last year. THANK YOU BOTH.
Today is The Day. Head shaving day.
Do you know how hard it is to talk a self portrait? It’s HARD. Those girls who take incessant selfies for facebook obviously have MAD SKILLS that I am missing.
In any case, today I am shaving my head. I have a few more hours of long hair left, so Evelyn needs to get all of her finger tangling and hair pulling out of the way now, before it’s GONE.
If you haven’t donated yet, I would love if you could. It’s for a good cause.
I am going to be so cold.
(And yes, Frogpondsrock will be videoing it, so you can watch me screech like a girl.)