Developmentally Delayed

by Veronica on February 13, 2013

in Evelyn

“She’s doing quite well you know. I’ve seen babies who’ve had cytomegalovirus and they were blind, deaf and seriously disabled. There are so many encouraging things about Evelyn here.”

It’s at this point that the CMV, which I’d dismissed, becomes much more real to me. I’d been told, months back, after her CMV urine tests came back positive for recent infection antibodies, to not concern myself. Most babies who have CMV don’t have any issues you see. Especially babies with clear brain ultrasounds and a clean MRI.

Later, the physio mentions to not expect Evelyn to do anything on a normal time frame. That she’s happy, she’s gorgeous (everyone loves my baby) and she’s easily pleased. What does it matter if she doesn’t crawl or walk within the average ranges? I’m warned to “warm the baby up” before we attempt anything. Evelyn needs more tactile stimulation before she will engage. Her hands need to be touched and stroked and made to feel things before she’ll use them of her own accord.

I’m told again, that she is gorgeous and happy and a lovely baby.

I’m also told that she is acting somewhere around the three month mark, despite being six months corrected and almost seven months old. Later, I will realise that she’s been acting like a three month old baby for the last three months and that it’s okay, it really is, but what happens in another six months, when progress is this slow?

Still.

We walk out of there knowing that this baby, our darling smooshy cheeked infant, she needs lots of therapy to learn to use her body properly. That there will be a specialised highchair in our future, and lots of exercises and busyness.

I cuddle my daughter and kiss her cheeks and listen to her giggle in delight. I watch her chew on her feet (“look at that! That’s age appropriate there, feet chewing. She’s interested, isn’t she?”) and coo at her brother and play with the new baby toys I bought her to encourage more tummy time and rolling over.

I look at her and she’s just delightful. Delay or not.

 

{ 21 comments }

Toni February 13, 2013 at 3:51 pm

She’s a gift. A beautiful, precious gift. X

dharawal February 13, 2013 at 3:52 pm

she is gorgeous and smooshy cheeked and loveable and you will make it through this.
Much love.

Debyl1 February 13, 2013 at 4:00 pm

The love your gorgeous girl is surrounded by is beautiful.Xx

Kate February 13, 2013 at 4:00 pm

I adore her! Keep checking in to see her darling face.

Becky February 13, 2013 at 4:04 pm

Dude.

Those CHEEKS.

The rest of the stuff can just go to hell.

I mean, look at THOSE CHEEKS!

tiff February 13, 2013 at 4:06 pm

She is gorgeous and you are doing everything right xx

Bri February 13, 2013 at 4:07 pm

My (now 6 year old) daughter didn’t roll over until well after she was 12 months old. She didn’t crawl until she was nearly 2 and she didn’t walk until after she was 2. She sat up, talked and did other things but no rolling, crawling or walking. No idea why, she just didn’t.

I guess I am offering up (for what it is worth) to take it as it comes.

Pixie February 13, 2013 at 4:30 pm

She is delightful.

Those cheeks! I sooooo want to smoosh them

Dorothy @ Singular Insanity February 13, 2013 at 5:22 pm

So glad to read this. As long as smooshy baby remains smooshy and gorgeous all is well. If delayed.

Marita February 13, 2013 at 8:29 pm

She is so adorable, seeing her smiles in my facebook feed lights up my day :)

rachael @ mogantosh February 13, 2013 at 9:00 pm

That is a beautiful face she has there. Must take after her mama. x

river February 13, 2013 at 9:25 pm

Damn, now I have to clean the finger marks off my screen from stroking Evelyn’s cheeks on the photos.

Fine February 13, 2013 at 11:15 pm

She is beautiful and absolutely gorgeous. And the most important thing is that she is loved by all of you in the most beautiful way.

Leslie February 14, 2013 at 12:32 am

I second Toni. Evelyn is a gift. So are you, Veronica.

Happy Elf Mom February 14, 2013 at 1:37 am

Of course she is wonderful and perfect in EVERY WAY, “delayed” or not. My son “Woodjie” is pretty delayed, and it doesn’t detract from the wonderful and great person he is, but that being said it DOES get harder as he gets older to do things with him and have people be understanding. You are right to be looking down the road and thinking you know? It’s gonna be tough… we can do it but it’s not going to be easy.

suzie February 14, 2013 at 5:02 am

You’ve got the right attitude and she is beautiful.

MultiBlogging Mum February 17, 2013 at 2:36 pm

Beautiful girl, wonderful loving caring Mummy and she’ll be fine!!
It all takes time and I know that developmental delay isnt what any parent wants, but one day she’ll catch up .. my kids did!!

cat@jugglingact February 19, 2013 at 8:55 pm

Jip,. I look at my L and yes, he is a delight although almost a year behind in development.

Anne February 23, 2013 at 4:13 pm

Whenever I look at the pics you post of Evelyn I see a beautiful, very much-loved little girl who is part of a wonderful family … whatever it is you’re doing, sweetie, keep doing it … you’re doing a fantastic job :)

Alison February 24, 2013 at 8:15 pm

Oh, babe. xox

Elizabeth March 29, 2013 at 3:10 pm

Kinesiology may be of benefit. Many kinesiologists work with developmentally delayed children to great effect. All the bestxxxxx

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