Comments on: Ehlers Danlos Awareness Month

By: Hyphen Mama

Hyphen Mama — Mon, 18 May 2009 00:31:24 +0000

Since you may not be able to get out to swim very often, I wonder if yoga would be helpful for your muscle strength. I know... who has time for YOGA? Well, I don't after 2 kids, and I really REALLY need it. My friend with MS is starting to use yoga to build strength and balance in her muscles. I liked the part of this video where she says that it's like a betrayal of your body. I cannot tell you how many times I've thought that!! Hyphen Mamas last blog post..How much is a cat's life worth?

By: Taz

Taz — Wed, 13 May 2009 03:44:19 +0000

i wish i could send a nanny out your way..

just to let ya have some much needed rest..

By: Tanya

Tanya — Tue, 12 May 2009 11:01:51 +0000

I understand it only cause I had an ex with it and I lived with him. It drove me mad even though I knew what it was.

I know it doesnt help a lot, but I do know you are doing a fantastic job coping with it and the house and children.

All you can do is explain to people as much as you can and blogging about it is one way to start. The worst thing I think is that a lot of the symptoms sound like the person involved is a hypochondriac rather than sufferng a real illness. Its a pain but at least you have your diagnosis now rather than not knowing.

Tanyas last blog post..Pleeeeeease Peanut

By: Jayne

Jayne — Tue, 12 May 2009 00:37:33 +0000

Hmmm, you've rung a few bells with me there, will have a good long stickybeak into EDS. Jaynes last blog post..Pumpkins and rabbits and sheep's balls Oh My!

By: Ree

Ree — Mon, 11 May 2009 23:59:53 +0000

Thanks for the education Veronica. Please rest as much as you can - we all want you happy and healthy. XXOO Rees last blog post..MM - Spirit

By: Mistress B

Mistress B — Mon, 11 May 2009 23:43:32 +0000

I can empathise a little. I have a few joints that are hyper extendable (elbow, few fingers)but never gave it a second though unless someone pointed it out until I had kids and they had joints that popped out of place as easily as butter drops off a hot knife and my mother then tells me that I was the same as a babe/toddler. And you can just imagine me trying to explain to the doctor at the local emergency department that "we didn't do anything to them, it just happens a lot" can't you? Luckily none of us pop joints anymore but still get a lot of strains and sprains and know the importance of keeping the muscles strong to make up for the joints not being so strong. I hope you get some down time soon Mistress Bs last blog post..Screw Up Tuesday

By: Barbara

Barbara — Mon, 11 May 2009 19:57:11 +0000

Blimey. I had no idea. Thank you for raising all of our awarenesses. Barbaras last blog post..131/365 – The Witch Had A Cat

By: Xbox4NappyRash

Xbox4NappyRash — Mon, 11 May 2009 18:55:05 +0000

The course for those doctors is something you should be very pleased with. A pioneer! Xbox4NappyRashs last blog post..Concurring with the Boomtown Rats

By: Jenni

Jenni — Mon, 11 May 2009 16:17:57 +0000

tell issac i said to let mummy get some rest, okay? Jennis last blog post..One Sided: Oscar from 7:30AM-8:00AM

By: lceel

lceel — Mon, 11 May 2009 12:15:31 +0000

@river - Yes - it IS the same thing. EDS comes at you on a scale - some severe, some lightly touched - but being able to bend her thumbs like that is a clear marker. As for you, Veronica, keep your weight down (something I have NOT been able to persuade SWMBO to do) and your muscles strong. Your muscles need to be able to do what the normal support structures can't do - keep everything in place. The best exercise for you is (believe it or not) swimming. Removing the effects of gravity and working on your muscles at the same time. lceels last blog post..The Promised Ones