Comments on: Ehlers Danlos Syndrome. What day to day life is like. http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/ Mon, 22 Mar 2010 14:34:16 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: EDS Alert Newsletter No. 34 « EDS Alert Newsletter http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-20748 EDS Alert Newsletter No. 34 « EDS Alert Newsletter Sat, 19 Sep 2009 03:52:30 +0000 http://somedaywewillsleep.com/?p=1900#comment-20748 [...] • Blog: Ehlers Danlos Syndrome. What day to day life is like [...] [...] • Blog: Ehlers Danlos Syndrome. What day to day life is like [...]

]]> By: Pia http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19146 Pia Thu, 30 Jul 2009 14:36:42 +0000 http://somedaywewillsleep.com/?p=1900#comment-19146 I admire your strength and your fortitude. You are an incredible person. More important than your disability, I feel your love, kindness and courage. I admire your strength and your fortitude. You are an incredible person. More important than your disability, I feel your love, kindness and courage.

]]> By: Leslie http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19130 Leslie Thu, 30 Jul 2009 04:00:56 +0000 http://somedaywewillsleep.com/?p=1900#comment-19130 A bad mood can nearly keep me in bed all day. I don't know how you do it. You are incredible. A bad mood can nearly keep me in bed all day. I don’t know how you do it. You are incredible.

]]> By: Ree http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19125 Ree Thu, 30 Jul 2009 02:30:51 +0000 http://somedaywewillsleep.com/?p=1900#comment-19125 It's what we do, honey. We write to get it out - to share our knowledge and our pains and our loves. And WE, who love you, love you all the more because of your strength and your honesty. xx It’s what we do, honey. We write to get it out – to share our knowledge and our pains and our loves.

And WE, who love you, love you all the more because of your strength and your honesty.

xx

]]> By: Joyce-Anne http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19121 Joyce-Anne Thu, 30 Jul 2009 00:54:15 +0000 http://somedaywewillsleep.com/?p=1900#comment-19121 You are unbelievably strong and an amazing woman. <3 and ((hugs)) You are unbelievably strong and an amazing woman. <3 and ((hugs))

]]> By: achelois http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19120 achelois Thu, 30 Jul 2009 00:44:07 +0000 http://somedaywewillsleep.com/?p=1900#comment-19120 Agreeing with Bendy about salt, coffee I like but it doesn't like me! I am fussy about my salt sources though as can't abide table salt and have a penchant for a sea salt the brand name I can't remember right now! Autonomic dysfunction is crap. EDS is crap but us bendies become our own experts. I always say I couldn't devorce as would have no one to mash the potatoes. A joke between friends when asking after my other half is 'how is the potatoe masher' I appear to have lost the ability to spell and all related grammar. I can't remember how I coped when the children were little - you have my complete and resounding empathy and understanding. Agreeing with Bendy about salt, coffee I like but it doesn’t like me! I am fussy about my salt sources though as can’t abide table salt and have a penchant for a sea salt the brand name I can’t remember right now! Autonomic dysfunction is crap. EDS is crap but us bendies become our own experts. I always say I couldn’t devorce as would have no one to mash the potatoes. A joke between friends when asking after my other half is ‘how is the potatoe masher’ I appear to have lost the ability to spell and all related grammar. I can’t remember how I coped when the children were little – you have my complete and resounding empathy and understanding.

]]> By: Hyphen Mama http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19119 Hyphen Mama Thu, 30 Jul 2009 00:04:18 +0000 http://somedaywewillsleep.com/?p=1900#comment-19119 Wow. Just wow. Wow. Just wow.

]]> By: Donna B. http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19115 Donna B. Wed, 29 Jul 2009 18:52:13 +0000 http://somedaywewillsleep.com/?p=1900#comment-19115 I didn't know anything about EDS either. You are definitely one strong woman! I didn’t know anything about EDS either. You are definitely one strong woman!

]]> By: Laura McIntyre http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19112 Laura McIntyre Wed, 29 Jul 2009 17:55:50 +0000 http://somedaywewillsleep.com/?p=1900#comment-19112 I admit to never having heard of it before your blog , can only imagine how hard it is dealing with it and all it brings while raising a family I admit to never having heard of it before your blog , can only imagine how hard it is dealing with it and all it brings while raising a family

]]> By: river http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19103 river Wed, 29 Jul 2009 08:59:13 +0000 http://somedaywewillsleep.com/?p=1900#comment-19103 You've explained it very well, and I'm glad you're working to make people more aware of this condition. I know that things will be easier for you when Amy and Isaac are able to do more things for themselves, but that's a long time away. Meanwhile, accept all the help you can, and I'll keep praying for a magic wand... You’ve explained it very well, and I’m glad you’re working to make people more aware of this condition. I know that things will be easier for you when Amy and Isaac are able to do more things for themselves, but that’s a long time away. Meanwhile, accept all the help you can, and I’ll keep praying for a magic wand…

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