Comments on: Ehlers Danlos Syndrome. What day to day life is like. http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/ Some day we will sleep... Thu, 09 Feb 2012 05:35:50 +0000 hourly 1 By: Michelle http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-33293 Michelle Mon, 08 Nov 2010 13:27:34 +0000 http://somedaywewillsleep.com/?p=1900#comment-33293 Veronica, I would like to thank you for sharing your day with us. It must have been a difficult post to write, to be so candid about all those little things. I'd never heard of EDS. It must take a real toll on your mothering in. My little girl has eczema and I get sad at not being able to take away the itchies, you can't even do something so 'simple' as run your little girl a bath. It seems like you have a wonderfully supportive mum, and a blogging community of people to support you and I am thankful on your behalf. Veronica, I would like to thank you for sharing your day with us. It must have been a difficult post to write, to be so candid about all those little things. I’d never heard of EDS. It must take a real toll on your mothering in. My little girl has eczema and I get sad at not being able to take away the itchies, you can’t even do something so ‘simple’ as run your little girl a bath. It seems like you have a wonderfully supportive mum, and a blogging community of people to support you and I am thankful on your behalf.

]]> By: Falling apart | Veronica Foale http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-29240 Falling apart | Veronica Foale Sat, 26 Jun 2010 04:59:02 +0000 http://somedaywewillsleep.com/?p=1900#comment-29240 [...] will be better. Being stoned is a nice way to leave the pain behind and swim through unthinking, but it’s not conducive to thinking or writing or [...] [...] will be better. Being stoned is a nice way to leave the pain behind and swim through unthinking, but it’s not conducive to thinking or writing or [...]

]]> By: Jazzmenow http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-27341 Jazzmenow Sat, 10 Apr 2010 22:35:39 +0000 http://somedaywewillsleep.com/?p=1900#comment-27341 Thanks for an enlightening well written post. Thanks for an enlightening well written post.

]]> By: EDS Alert Newsletter No. 34 « EDS Alert Newsletter http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-20748 EDS Alert Newsletter No. 34 « EDS Alert Newsletter Sat, 19 Sep 2009 03:52:30 +0000 http://somedaywewillsleep.com/?p=1900#comment-20748 [...] • Blog: Ehlers Danlos Syndrome. What day to day life is like [...] [...] • Blog: Ehlers Danlos Syndrome. What day to day life is like [...]

]]> By: Pia http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19146 Pia Thu, 30 Jul 2009 14:36:42 +0000 http://somedaywewillsleep.com/?p=1900#comment-19146 I admire your strength and your fortitude. You are an incredible person. More important than your disability, I feel your love, kindness and courage. I admire your strength and your fortitude. You are an incredible person. More important than your disability, I feel your love, kindness and courage.

]]> By: Leslie http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19130 Leslie Thu, 30 Jul 2009 04:00:56 +0000 http://somedaywewillsleep.com/?p=1900#comment-19130 A bad mood can nearly keep me in bed all day. I don't know how you do it. You are incredible. A bad mood can nearly keep me in bed all day. I don’t know how you do it. You are incredible.

]]> By: Ree http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19125 Ree Thu, 30 Jul 2009 02:30:51 +0000 http://somedaywewillsleep.com/?p=1900#comment-19125 It's what we do, honey. We write to get it out - to share our knowledge and our pains and our loves. And WE, who love you, love you all the more because of your strength and your honesty. xx It’s what we do, honey. We write to get it out – to share our knowledge and our pains and our loves.

And WE, who love you, love you all the more because of your strength and your honesty.

xx

]]> By: Joyce-Anne http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19121 Joyce-Anne Thu, 30 Jul 2009 00:54:15 +0000 http://somedaywewillsleep.com/?p=1900#comment-19121 You are unbelievably strong and an amazing woman. <3 and ((hugs)) You are unbelievably strong and an amazing woman. <3 and ((hugs))

]]> By: achelois http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19120 achelois Thu, 30 Jul 2009 00:44:07 +0000 http://somedaywewillsleep.com/?p=1900#comment-19120 Agreeing with Bendy about salt, coffee I like but it doesn't like me! I am fussy about my salt sources though as can't abide table salt and have a penchant for a sea salt the brand name I can't remember right now! Autonomic dysfunction is crap. EDS is crap but us bendies become our own experts. I always say I couldn't devorce as would have no one to mash the potatoes. A joke between friends when asking after my other half is 'how is the potatoe masher' I appear to have lost the ability to spell and all related grammar. I can't remember how I coped when the children were little - you have my complete and resounding empathy and understanding. Agreeing with Bendy about salt, coffee I like but it doesn’t like me! I am fussy about my salt sources though as can’t abide table salt and have a penchant for a sea salt the brand name I can’t remember right now! Autonomic dysfunction is crap. EDS is crap but us bendies become our own experts. I always say I couldn’t devorce as would have no one to mash the potatoes. A joke between friends when asking after my other half is ‘how is the potatoe masher’ I appear to have lost the ability to spell and all related grammar. I can’t remember how I coped when the children were little – you have my complete and resounding empathy and understanding.

]]> By: Hyphen Mama http://somedaywewillsleep.com/ehlers-danlos-syndrome-what-everydaylife-is-like-for-me/comment-page-1/#comment-19119 Hyphen Mama Thu, 30 Jul 2009 00:04:18 +0000 http://somedaywewillsleep.com/?p=1900#comment-19119 Wow. Just wow. Wow. Just wow.

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