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	<title>Comments on: I Don&#8217;t Look Sick</title>
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	<description>Some day we will sleep...</description>
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		<title>By: Petra</title>
		<link>http://somedaywewillsleep.com/i-dont-look-sick/comment-page-1/#comment-11978</link>
		<dc:creator>Petra</dc:creator>
		<pubDate>Fri, 12 Dec 2008 07:35:52 +0000</pubDate>
		<guid isPermaLink="false">http://somedaywewillsleep.com/?p=983#comment-11978</guid>
		<description>Veronica, Your mom is so sweet.  I read her blog about you today, and it really struck a cord with me.  I left a comment over there, but will copy it here for you.  Please let me know if I can help with any research or information. I didn&#039;t start REALLY feeling better until I took matters out of the doctor&#039;s hands and put them into my own and started learning everything I could about my symptoms.  I was blessed enough to have an old friend of my husband&#039;s recognize some of my symptoms and put me on the right path.  Here is the comment I left with your mom:

Oh wow! I have such similar symptoms!! It took me YEARS of my symptoms getting worse, doctors just shoving bags of drugs at me and/or telling me or at least looking at me like I was making it all up, it was all in my head, I was just depressed, or shrugging their shoulders with nothing to tell me except &quot;well, keep a health diary and let&#039;s go from there&quot;.  After years of ups and downs and very hard pregnancies... finally, last year at age 31 (I&#039;m 32 now), I started to find some answers.  On my own, with the advice of a friend and with my own research and trial and error treatments.  

I highly suggest that Veronica research the following things - and tell her doctor to test her for them (doctors don&#039;t like to test for these things, because it&#039;s not a simple blood test, and/or they aren&#039;t familiar enough with them)...
1. gluten intolerance/celiac disease (for the headaches and stomach problems!!! I can totally avoid migraines and usually avoid other types of headaches for the first time in my teenage/adult life!)
2. fibromyalgia and chronic myofascial pain (fibromyalgia can mimic CFS, but it&#039;s not the same thing, and from all her joint and pain issues - I am guessing she has the above two things - not CFS).  

Please, please, please - ask me any questions if you guys decide to start researching any of these things - I have learned so much in the past almost-year, and would love to pass on the information to someone who could use it.  I also, along with a gluten intolerance, have a chemical sensitivity, so have gone fairly &#039;green&#039; which has helped many symptoms as well.  If you need links to symptoms and how to diagnose any of the above mentioned items, let me know and I&#039;ll send those along as well.  

I&#039;ll copy this comment onto Veronica&#039;s blog as well.  I HOPE this info can help you - I WISH someone had told me about these things years ago - I could have avoided so much pain and fatigue.  I was finally getting to where I had energy, was feeling good, and was on a regular and actual difficult exercise regimen when I found out I was pregnant again. The pregnancy has exacerbated my symptoms so I can&#039;t fight the diseases I have as well, but I do know enough that this pregnancy isn&#039;t as bad as my last one. :)</description>
		<content:encoded><![CDATA[<p>Veronica, Your mom is so sweet.  I read her blog about you today, and it really struck a cord with me.  I left a comment over there, but will copy it here for you.  Please let me know if I can help with any research or information. I didn&#8217;t start REALLY feeling better until I took matters out of the doctor&#8217;s hands and put them into my own and started learning everything I could about my symptoms.  I was blessed enough to have an old friend of my husband&#8217;s recognize some of my symptoms and put me on the right path.  Here is the comment I left with your mom:</p>
<p>Oh wow! I have such similar symptoms!! It took me YEARS of my symptoms getting worse, doctors just shoving bags of drugs at me and/or telling me or at least looking at me like I was making it all up, it was all in my head, I was just depressed, or shrugging their shoulders with nothing to tell me except &#8220;well, keep a health diary and let&#8217;s go from there&#8221;.  After years of ups and downs and very hard pregnancies&#8230; finally, last year at age 31 (I&#8217;m 32 now), I started to find some answers.  On my own, with the advice of a friend and with my own research and trial and error treatments.  </p>
<p>I highly suggest that Veronica research the following things &#8211; and tell her doctor to test her for them (doctors don&#8217;t like to test for these things, because it&#8217;s not a simple blood test, and/or they aren&#8217;t familiar enough with them)&#8230;<br />
1. gluten intolerance/celiac disease (for the headaches and stomach problems!!! I can totally avoid migraines and usually avoid other types of headaches for the first time in my teenage/adult life!)<br />
2. fibromyalgia and chronic myofascial pain (fibromyalgia can mimic CFS, but it&#8217;s not the same thing, and from all her joint and pain issues &#8211; I am guessing she has the above two things &#8211; not CFS).  </p>
<p>Please, please, please &#8211; ask me any questions if you guys decide to start researching any of these things &#8211; I have learned so much in the past almost-year, and would love to pass on the information to someone who could use it.  I also, along with a gluten intolerance, have a chemical sensitivity, so have gone fairly &#8216;green&#8217; which has helped many symptoms as well.  If you need links to symptoms and how to diagnose any of the above mentioned items, let me know and I&#8217;ll send those along as well.  </p>
<p>I&#8217;ll copy this comment onto Veronica&#8217;s blog as well.  I HOPE this info can help you &#8211; I WISH someone had told me about these things years ago &#8211; I could have avoided so much pain and fatigue.  I was finally getting to where I had energy, was feeling good, and was on a regular and actual difficult exercise regimen when I found out I was pregnant again. The pregnancy has exacerbated my symptoms so I can&#8217;t fight the diseases I have as well, but I do know enough that this pregnancy isn&#8217;t as bad as my last one. <img src='http://somedaywewillsleep.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
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		<title>By: kompostela</title>
		<link>http://somedaywewillsleep.com/i-dont-look-sick/comment-page-1/#comment-11958</link>
		<dc:creator>kompostela</dc:creator>
		<pubDate>Thu, 11 Dec 2008 13:57:16 +0000</pubDate>
		<guid isPermaLink="false">http://somedaywewillsleep.com/?p=983#comment-11958</guid>
		<description>Hope that everything will be better soon

&lt;abbr&gt;&lt;em&gt;kompostelas last blog post..&lt;a href=&quot;http://feeds.feedburner.com/~r/DevelopmentToddler/~3/473549177/&quot; rel=&quot;nofollow&quot;&gt;Game to Develop Your Toddler’s Little Fingers Skills&lt;/a&gt;&lt;/abbr&gt;&lt;/em&gt;</description>
		<content:encoded><![CDATA[<p>Hope that everything will be better soon</p>
<p><abbr><em>kompostelas last blog post..<a href="http://feeds.feedburner.com/~r/DevelopmentToddler/~3/473549177/" rel="nofollow">Game to Develop Your Toddler’s Little Fingers Skills</a></em></abbr></p>
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		<title>By: Physio &#124; Sleepless Nights</title>
		<link>http://somedaywewillsleep.com/i-dont-look-sick/comment-page-1/#comment-11895</link>
		<dc:creator>Physio &#124; Sleepless Nights</dc:creator>
		<pubDate>Wed, 10 Dec 2008 00:53:13 +0000</pubDate>
		<guid isPermaLink="false">http://somedaywewillsleep.com/?p=983#comment-11895</guid>
		<description>[...] talked a little about my CFS and the condition of my muscles and joints which are in her words &#8216;the worst muscles and [...]</description>
		<content:encoded><![CDATA[<p>[...] talked a little about my CFS and the condition of my muscles and joints which are in her words &#8216;the worst muscles and [...]</p>
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		<title>By: LaskiGal</title>
		<link>http://somedaywewillsleep.com/i-dont-look-sick/comment-page-1/#comment-9333</link>
		<dc:creator>LaskiGal</dc:creator>
		<pubDate>Wed, 24 Sep 2008 20:40:16 +0000</pubDate>
		<guid isPermaLink="false">http://somedaywewillsleep.com/?p=983#comment-9333</guid>
		<description>I can only imagine the frustration you must feel by looking one way yet feeling another. You are incredibly strong, though. No doubt . . . 

And you are so right, pregnancy is really not all that fun. I was so miserable the last couple of months (hobbit feet, out-of-whack back, pounding headaches) I finally understood while mothers screamed &quot;Get this thing out of me&quot; before they lovingly cradled their babe in their arms . . . 

Take care, you . . .

LaskiGals last blog post..&lt;a href=&quot;http://laskigal.blogspot.com/2008/09/mantra-of-fearless.html&quot; rel=&quot;nofollow&quot;&gt;The Mantra of the Fearless&lt;/a&gt;</description>
		<content:encoded><![CDATA[<p>I can only imagine the frustration you must feel by looking one way yet feeling another. You are incredibly strong, though. No doubt . . . </p>
<p>And you are so right, pregnancy is really not all that fun. I was so miserable the last couple of months (hobbit feet, out-of-whack back, pounding headaches) I finally understood while mothers screamed &#8220;Get this thing out of me&#8221; before they lovingly cradled their babe in their arms . . . </p>
<p>Take care, you . . .</p>
<p>LaskiGals last blog post..<a href="http://laskigal.blogspot.com/2008/09/mantra-of-fearless.html" rel="nofollow">The Mantra of the Fearless</a></p>
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		<title>By: Phibian</title>
		<link>http://somedaywewillsleep.com/i-dont-look-sick/comment-page-1/#comment-9326</link>
		<dc:creator>Phibian</dc:creator>
		<pubDate>Wed, 24 Sep 2008 12:13:18 +0000</pubDate>
		<guid isPermaLink="false">http://somedaywewillsleep.com/?p=983#comment-9326</guid>
		<description>Have you been tested for celiac disease (and / or tried a gluten free diet)?  Your symptoms sound awfully like mine pre-diagnosis, but they wouldn&#039;t ever have diagnosed me if my mother hadn&#039;t been diagnosed first.  

http://www.amazon.com/gp/reader/006076693X/ref=sib_dp_ptu#reader-link (search for chronic fatigue)</description>
		<content:encoded><![CDATA[<p>Have you been tested for celiac disease (and / or tried a gluten free diet)?  Your symptoms sound awfully like mine pre-diagnosis, but they wouldn&#8217;t ever have diagnosed me if my mother hadn&#8217;t been diagnosed first.  </p>
<p><a href="http://www.amazon.com/gp/reader/006076693X/ref=sib_dp_ptu#reader-link" rel="nofollow">http://www.amazon.com/gp/reader/006076693X/ref=sib_dp_ptu#reader-link</a> (search for chronic fatigue)</p>
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		<title>By: Widdle Shamrock</title>
		<link>http://somedaywewillsleep.com/i-dont-look-sick/comment-page-1/#comment-9308</link>
		<dc:creator>Widdle Shamrock</dc:creator>
		<pubDate>Tue, 23 Sep 2008 21:38:44 +0000</pubDate>
		<guid isPermaLink="false">http://somedaywewillsleep.com/?p=983#comment-9308</guid>
		<description>Hugs, yeah blessing or curse ??? 

I find when I am feeling at my worst, I get the most compliments that I look good !!!!

Widdle Shamrocks last blog post..&lt;a href=&quot;http://widdleshamrock.wordpress.com/2008/09/24/life-is-a-caberet-old-son/&quot; rel=&quot;nofollow&quot;&gt;Life is a caberet old son&lt;/a&gt;</description>
		<content:encoded><![CDATA[<p>Hugs, yeah blessing or curse ??? </p>
<p>I find when I am feeling at my worst, I get the most compliments that I look good !!!!</p>
<p>Widdle Shamrocks last blog post..<a href="http://widdleshamrock.wordpress.com/2008/09/24/life-is-a-caberet-old-son/" rel="nofollow">Life is a caberet old son</a></p>
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		<title>By: Sarcastic Mom</title>
		<link>http://somedaywewillsleep.com/i-dont-look-sick/comment-page-1/#comment-9301</link>
		<dc:creator>Sarcastic Mom</dc:creator>
		<pubDate>Tue, 23 Sep 2008 15:11:09 +0000</pubDate>
		<guid isPermaLink="false">http://somedaywewillsleep.com/?p=983#comment-9301</guid>
		<description>Oh, dear Veronica, I am so sorry.

While it is not the same, the HT has affected me in such a way that I have a better understanding of what you mean than if I didn&#039;t have it.  They can&#039;t actually treat the HT (the antibodies attacking my thyroid and making me feel miserable) but they can treat a damaged thyroid.  Oh, wait, one that is damaged ENOUGH.  After diagnosis (FINALLY) years ago, the doctor basically said, &quot;When it&#039;s really, really bad, we can help you.  Right now it&#039;s not bad ENOUGH, so there&#039;s nothing we can do for you.  But we need to keep doing regular tests and scans. Bye.&quot;

It&#039;s also an auto-immune disorder - a large part of my &quot;immunity army&quot; is too busy beating the shit out of my thyroid to work on ACTUAL invaders.  *sigh*

I&#039;ll bet you are ready for that baby to come out so that yu can at least eat more reliably... though sleep is what you really need, too, eh?  Gahhhhhhh.

&lt;3you

Sarcastic Moms last blog post..&lt;a href=&quot;http://feeds.feedburner.com/~r/sarcasticmomdotcom/~3/400470726/&quot; rel=&quot;nofollow&quot;&gt;If you want to punch me in the face, here’s your chance.&lt;/a&gt;</description>
		<content:encoded><![CDATA[<p>Oh, dear Veronica, I am so sorry.</p>
<p>While it is not the same, the HT has affected me in such a way that I have a better understanding of what you mean than if I didn&#8217;t have it.  They can&#8217;t actually treat the HT (the antibodies attacking my thyroid and making me feel miserable) but they can treat a damaged thyroid.  Oh, wait, one that is damaged ENOUGH.  After diagnosis (FINALLY) years ago, the doctor basically said, &#8220;When it&#8217;s really, really bad, we can help you.  Right now it&#8217;s not bad ENOUGH, so there&#8217;s nothing we can do for you.  But we need to keep doing regular tests and scans. Bye.&#8221;</p>
<p>It&#8217;s also an auto-immune disorder &#8211; a large part of my &#8220;immunity army&#8221; is too busy beating the shit out of my thyroid to work on ACTUAL invaders.  *sigh*</p>
<p>I&#8217;ll bet you are ready for that baby to come out so that yu can at least eat more reliably&#8230; though sleep is what you really need, too, eh?  Gahhhhhhh.</p>
<p>&lt;3you</p>
<p>Sarcastic Moms last blog post..<a href="http://feeds.feedburner.com/~r/sarcasticmomdotcom/~3/400470726/" rel="nofollow">If you want to punch me in the face, here’s your chance.</a></p>
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		<title>By: Jenn FL</title>
		<link>http://somedaywewillsleep.com/i-dont-look-sick/comment-page-1/#comment-9300</link>
		<dc:creator>Jenn FL</dc:creator>
		<pubDate>Tue, 23 Sep 2008 15:09:19 +0000</pubDate>
		<guid isPermaLink="false">http://somedaywewillsleep.com/?p=983#comment-9300</guid>
		<description>Sending lots of good, healing thoughts your way. You&#039;re almost there, hang in there Veronica! I wish I could help!

*gentle hugs*

Jenn FLs last blog post..&lt;a href=&quot;http://willowmoondancer.blogspot.com/2008/09/one-more-day.html&quot; rel=&quot;nofollow&quot;&gt;One More Day&lt;/a&gt;</description>
		<content:encoded><![CDATA[<p>Sending lots of good, healing thoughts your way. You&#8217;re almost there, hang in there Veronica! I wish I could help!</p>
<p>*gentle hugs*</p>
<p>Jenn FLs last blog post..<a href="http://willowmoondancer.blogspot.com/2008/09/one-more-day.html" rel="nofollow">One More Day</a></p>
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		<title>By: Fe</title>
		<link>http://somedaywewillsleep.com/i-dont-look-sick/comment-page-1/#comment-9283</link>
		<dc:creator>Fe</dc:creator>
		<pubDate>Tue, 23 Sep 2008 06:09:54 +0000</pubDate>
		<guid isPermaLink="false">http://somedaywewillsleep.com/?p=983#comment-9283</guid>
		<description>Wow.  That is awful.  I SUCK at pregnancy, but have no auto-immune disorder.  I can only imagine the exhuastion and pain must be incredibly debilitating.

(((((( hug ))))))))

Fes last blog post..&lt;a href=&quot;http://blog-fe.blogspot.com/2008/09/sometimes-my-lot-in-life.html&quot; rel=&quot;nofollow&quot;&gt;Sometimes my lot in life...&lt;/a&gt;</description>
		<content:encoded><![CDATA[<p>Wow.  That is awful.  I SUCK at pregnancy, but have no auto-immune disorder.  I can only imagine the exhuastion and pain must be incredibly debilitating.</p>
<p>(((((( hug ))))))))</p>
<p>Fes last blog post..<a href="http://blog-fe.blogspot.com/2008/09/sometimes-my-lot-in-life.html" rel="nofollow">Sometimes my lot in life&#8230;</a></p>
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		<title>By: Sharon</title>
		<link>http://somedaywewillsleep.com/i-dont-look-sick/comment-page-1/#comment-9280</link>
		<dc:creator>Sharon</dc:creator>
		<pubDate>Tue, 23 Sep 2008 03:15:14 +0000</pubDate>
		<guid isPermaLink="false">http://somedaywewillsleep.com/?p=983#comment-9280</guid>
		<description>I think maybe another round of testing is called for - after this baby is born of course. Fibromyalgia sounds a possible to me as does MS. I reckon an unconfirmable CFS diagnosis lasting this many years is pretty damn unacceptable. In the meantime you&#039;ll just have to take each day as it comes and do the best you can, which I&#039;m sure is what you are doing.

Due to surgeries for 2 breast cancers I too have problems raising my arms for any length of time so, if DH isn&#039;t around to peg out the washing, I usually just arrange it on a clothes-horse on the verandah. The other option is to take the little step-set out and stand on that. Worth a try?</description>
		<content:encoded><![CDATA[<p>I think maybe another round of testing is called for &#8211; after this baby is born of course. Fibromyalgia sounds a possible to me as does MS. I reckon an unconfirmable CFS diagnosis lasting this many years is pretty damn unacceptable. In the meantime you&#8217;ll just have to take each day as it comes and do the best you can, which I&#8217;m sure is what you are doing.</p>
<p>Due to surgeries for 2 breast cancers I too have problems raising my arms for any length of time so, if DH isn&#8217;t around to peg out the washing, I usually just arrange it on a clothes-horse on the verandah. The other option is to take the little step-set out and stand on that. Worth a try?</p>
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