It was probably a good thing I had decided to take most of winter and early spring off, because the ‘flu that hit us nearly three weeks ago almost killed me and I was incredibly grateful to not be juggling markets, or cancelling engagements while dying in bed.
The downside of this is the slight twitchiness I get when I look at my (mostly) empty calendar for October, and start wondering how to motivate myself without deadline-panic looming.
Amy was sick for nearly two weeks straight, and as week three ends, she’s still very low energy. Isaac is still coughing up a storm while swearing black and blue that HE’S NOT SICK and I AM FINE, which is nice, but school goes back on Monday and I really don’t want to have them send him home because he’s full of HACKING DEATH COUGH.
Evelyn, surprisingly enough, didn’t get too unwell. It’s shocking and amazing and I am so so so grateful for the fact she merely ran a vague fever for 14 days straight and grizzled a lot, but kept eating and demanding TV programs and didn’t even need a little bit of extra medical care. SO GRATEFUL for no hospital admissions.
It’s no secret that I am disabled. It’s also no secret that I don’t talk about it much anymore, or that you can only see it if you know me well enough to get to see inside my clothing for the braces and the painkillers, and the very careful system I have in place allowing me to (mostly) run my business without too much drama.
This doesn’t stop the government demanding I provide them with all of my medical records within 14 days to prove that my genetic degenerative incurable condition hasn’t magically become curable, fixable, and not coded into my DNA. But hey, who the fuck am I to disagree with them? I’ll just go take up buckets of time at the doctors office while I explain to a locum – because my doctor for the last 27 years has just JUST retired – all of my issues and ask him very nicely to write me a report.
And it’s not so bad for me – I have access to my medical records, and a doctor who can see me within a week of asking. I have a nasty diagnosis which precludes me working, if working doesn’t involve a nap each afternoon, a carer to relocate joints and help me out of chairs, someone to lift everything heavy for me ever, and the ability to lay down with my feet in the air the moment my blood pressure goes screwy and I throw up. Luckily working for myself allows these things, even if I am a bit twitchy about a lack of markets and the need to Make All Of The Things coupled with No Energy To Make Anything.
Of course, everyone knows the best way for the government to fix a fiscal problem is to skim from the bottom of the pile. (Hahahaha, guys. GUYS. You think I wouldn’t work a real job with benefits and regular money if I fucking could? I WOULD. SO FAST.)
So that’s where we’re at. It’s a bit insanity-making to be honest. I had a full medical review done in July ’15, so to have to provide all new paperwork over again is a bit rich, and frankly it’s a waste of both spoons and medicare, but apparently disabled voices don’t count when we point this stuff out.
Hashtag stressed.
On the flip side, soapmaking is going well, if we don’t count the death flu induced recovery period. Soapmaking is kind of the perfect job for me – slow, steady, and doesn’t require too much standing (honestly, it’s basically all paperwork anyway).
In any case, I have another month before the serious summer markets start again and I use every single spoon ever to get through the crazy three months, before I go mad with inactivity over winter again. Tassie markets are slightly unbalanced that way.
Feast or famine, baby.
But that’s me. How are you, Internet?
You’d think a permanent, documented disabilty, would have a permanent, documented record. How can governments be so dumb?
I know, right? Highly frustrating and I feel like it’s wasting more money than they’ll save. Penny wise and pound foolish.
Couldn’t agree more. If a person has a permanent condition – ED, say, or I dunno, paraplegia? – this isn’t going to CHANGE from review to review, is it? “Oh yes, I see you are still paralysed from the waist down…”
I can see periodic reviews for conditions that are acute and likely to be suspectible to improvement or change over time. For instance, one of my friends was on disability while being treated (successfully) for breast cancer. One year later, she was in a very different place medically and agreed with her re-assessment that put her onto Newstart instead of disability (she was no longer unable to work).
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