Isaac’s E.C.G.

by Veronica on August 26, 2009

in Ehlers Danlos Syndrome, Headfuck

As we walked into the hospital, I took a deep breath. The hospital smells like cleaning agent and regurgitated air conditioning. It’s not a smell you forget in a hurry. It was bitterly cold outside and I hopped up and down a little as we waited for the lift. Isaac gurgled in his pram and I smiled down at him.

I hadn’t thought about it. I’d pushed it to the back of my mind and refused to even dwell on the possibility of anything being wrong. It’s just a baseline appointment. We don’t expect to see anything wrong here. I breathed.

The lift bell rang as the lift arrived and we stepped in.

Level 2.

The same level all of Nan’s oncology appointments were on.

As the lift doors opened, my heart started to race. I stepped out with a confidence I didn’t feel and walked along the corridor.

We got to the junction of the two hallways. One would take me to cardiology. The other led to the Oncology doctors rooms.

I looked down the hallway I had walked so many times before.

Walk along there. Turn left and then left again. Smile at the receptionist and then a right turn into the waiting room.

The waiting room that would no longer hold my mother and grandmother. We three. The girls club.

From Nan’s diary.

[…] the good thing about Kim & Von is that we can talk about anything, I can be doom and gloom or happy and chatty it makes no difference to them they don’t get uncomfortable and can do the “what ifs” with me. What would I do without my “Girls Club”??

I breathed and walked in the other direction. Along another corridor we three had all walked together more times that I counted, and finally down a new one. One without any lingering memories.

We found our area and spoke to reception. Isaac gurgled in his pram and I lifted him out to feed him. He elected to smile and gurgle instead. Smiling back at him I gave up on the breastfeed.

5 minutes later, his name was called.

Here you go, come in. Can you take his tops off for me? Right. Let’s begin.

She was lovely. We made small talk while Isaac gurgled and tried to eat the ultrasound wand. I watched the screen nervously, but there is nothing to see on a heart ultrasound. The faint whoomp whoomp of Isaac’s heartbeat at intervals broke through the pictures being taken.

Well. Everything looks fine. There are no issues with his heart whatsoever. His mitral valve has no leakiness. It’s a perfect baseline. Once you get him dressed you can leave. No need to talk to the girls at the front desk. Will you need to come back again?

I’ll talk to the Paediatricians about it. I think they want to keep an eye on both children, but it wouldn’t be often, probably every 2 years.

That sounds about right. I’ll see you later then.

She held the door for us.

Thank you so much.

She looked at me and smiled.

Nathan and I walked down the corridors, back to where all my memories lay.

It’s really nice to walk out of the hospital with good news.

Yes. Yes it is.

We walked on.

MistressB August 26, 2009 at 4:28 pm

thank goddess for that.

You deserved some good news 🙂

river August 26, 2009 at 5:21 pm

Fantastic news! Walked out of there with a little spring in your step, didn’t you? Smile on your face and all.

Renee August 26, 2009 at 5:55 pm

Congratulations.. And thank goodness =)

Sharon August 26, 2009 at 6:36 pm

Woo hoo! It’s about time for some good news! Bet there are lots of huge relief type sighs going off all over the place.

Veronica August 26, 2009 at 6:58 pm

Yes, definitely fantastic news. Now we’ve just got to get through the EEG (to test for seizures, after the one he had a few weeks ago) and that will hopefully be the end of the intense testing.

Both kids will be having physio and will be having all their care managed by the Paediatric team at the hospital because of the Ehlers Danlos though. It remains to be seen how affected Isaac is by that. His skin tears easily and he bruises lots, but that is a whole other post.

Marylin August 26, 2009 at 7:46 pm

Oh thank goodness, what a relief! I was holding my breath reading this. xxx

katef August 26, 2009 at 9:26 pm

yay for good news… just yay!

Mrs. C August 26, 2009 at 9:41 pm

Wonderful news!! Glad there is a team and not someone poo-pooing your concerns at least. :]

Marie August 26, 2009 at 10:54 pm

Whew. So glad to hear it!

Jenni August 26, 2009 at 11:43 pm

breathing a huge sigh of relief for you over here.

lceel August 27, 2009 at 12:16 am

Good news. GREAT news. Really, really good news. Let’s focus on that, shall we?

Xbox4NappyRash August 27, 2009 at 3:44 am

About bloody time.

jean August 27, 2009 at 4:57 am

That sound? It was me, sighing with relief. You deserve some good news.

Barbara August 27, 2009 at 8:55 am

Thank goodness. I’m glad it was ok. But sad you had to walk those corridors again.

I hope the EEG is ok too. Thinking of you.

CK August 27, 2009 at 9:43 am

That was a beautifully written post.

Congratulations on the good news!

Ree August 27, 2009 at 10:03 am

I’m so glad to hear that news! You all deserve happy times after all you’ve been (and are going) through.

XX

Tanya August 27, 2009 at 10:09 am

I love walking out of the hospital wih good news, or a baby lol.

The hospital always reminded me of my Gramps up until I started going for pregnancy appointments. Now it feels like a positive place, a place for pregnancy and babies. I don’t mind it now.

That’s great, one worry off your shoulders. Celebrate with chocolate?

(I’ll celebrate with chocolate in your honour, ok?)

achelois August 27, 2009 at 11:43 am

This post is definately newspaper regular column material. Pleased for you that the stress of test is over & positive outcome. Willing the next to be the same.

Joyce-Anne August 27, 2009 at 12:39 pm

Yay for great news! If I’m breathing a sigh of relief you certainly must be.

Hyphen Mama August 27, 2009 at 1:57 pm

Okay, I had to go to the END of the post and read the last 2 sentences first, because I COULD NOT WAIT… the suspense was making me all anxious.

SUCH good news!

Brenda August 27, 2009 at 4:17 pm

A BIG YAY for Isaac!

nikki August 27, 2009 at 10:39 pm

I’m so glad to hear good news. You deserve it babe.

Jeanette August 28, 2009 at 6:25 am

So very glad that it’s good news!

A Free Man August 28, 2009 at 10:56 am

My son was born with a hole in his heart. It was still there at his last check and we have to take him back again soon. Doesn’t slow him down a bit though.

Andi August 29, 2009 at 1:47 am

Awesome news! So happy for you!

Taz August 29, 2009 at 1:09 pm

fantastic news..

YAY for good news

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