Procrastination and complaints.

by Veronica on November 20, 2012

in Evelyn

I’m procrastinating over my NaNo project and instead I’m talking to you, dear Internet. Not that I really need to be procrastinating. Things are going well, but I’ve just reached the end of a big scene and I need to go and lie down in a darkened room while I play “what if” with my characters. What if someone breaks an ankle? What if that terribly important thing goes missing? WHAT HAPPENS THEN? TELL ME THAT, HEY.

Sorry. Distracted.

Also distracting: Stress. Evelyn has lots of blood drawn tomorrow, followed by a brain and adrenal ultrasound. We’re looking for any issues with her adrenal system, as well as looking to see if the cytomegalovirus has caused any patches of calcification in her brain. If there are, then we have some idea of what is causing her neuro, visual and movement issues. If there’s nothing, well then, back to the drawing board we go.

She laid on the floor this morning, propped up slightly on a breastfeeding pillow and smiled and cooed while I spoke to her. This is a good thing – a great thing in fact. She enjoys having attention paid to her, even if she has no limb control, hasn’t laughed, and still twitches an awful lot.

Anyway, I left her on the pillow, returning a few moments later to discover that her eyes had stopped working again. She jumped when I talked to her, before gooing and smiling again – but not looking at my face.

It’s all just bizarre. Her hands are still mostly clenched and the progress she is making is infinitely slow in comparison to her growth.

We’ll see though. Hopefully the tests tomorrow will give us some more ideas of what is going on. If nothing else, we might be able to rule things out.

Wish us luck.

As for complaints – my internet has been shaped due to SOMEONE’S current obsession with the ABC4Kids website and videos. Stab me in the eye? It would be less painful than trying to do anything online currently. Ack.

Sharon A. November 20, 2012 at 3:54 pm

Fingers crossed they find something tomorrow. I think you’re doing really well at Nanowrimo too!

Veronica November 21, 2012 at 8:21 am

I’m not sure if finding something is a good thing or a bad thing at this point! Sigh. Thank you.x

Sharon A. November 21, 2012 at 10:43 am

Yeah, but if you know something, you can treat her, I guess? It sucks she’s going through this regardless:(

Veronica November 21, 2012 at 10:47 am

Very true. Knowing is always going to be better than not knowing.

river November 20, 2012 at 5:35 pm

I’m wishing you truckloads of luck tomorrow.

Veronica November 21, 2012 at 8:22 am

Thanks River. It’s going to be a stressful afternoon.

Trish November 21, 2012 at 8:34 am

Thinking of you today and hoping you get some good news or a way forward.

Pixie November 21, 2012 at 8:43 am

Will be thinking of you and Evie and sending lots of love and light xxxxxxxx

Pauline November 23, 2012 at 11:53 am

Hi Veronica, I was thinking of you and Evelyn the last few days. I hope everything went well.

Veronica November 23, 2012 at 11:59 am

I’ll update properly when my Internet speeds up again (bring on Sunday!) but the short answer is that her ultrasound looked clear of calcifications, or visible issues (brilliant!) and I haven’t heard from the Paed regarding her blood tests, so that’s probably a no news is good news thing.

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