Comments on: Seven Years

By: EDS Alert Newsletter No. 31 « EDS Alert Newsletter

EDS Alert Newsletter No. 31 « EDS Alert Newsletter — Thu, 12 Nov 2009 02:26:47 +0000

[...] • Blog: Seven Years | Sleepless Nights [...]

By: Physiotherapy and fear | Sleepless Nights

Physiotherapy and fear | Sleepless Nights — Wed, 12 Aug 2009 11:34:49 +0000

[...] Seven years of being told by medical professionals that nothing is really wrong has that effect on a person. [...]

By: Ehlers Danlos Syndrome. What day to day life is like. | Sleepless Nights

Ehlers Danlos Syndrome. What day to day life is like. | Sleepless Nights — Tue, 28 Jul 2009 10:10:50 +0000

[...] too. I can’t just jump out of bed, otherwise I’ll fall over pretty fast. Before I was diagnosed, I did these things without actively thinking about [...]

By: FishyGirl

FishyGirl — Tue, 28 Apr 2009 18:08:46 +0000

Knowing is more than half the battle. I suffered for 7 years too with much of the same stuff, only it's my heart that was all wonky, and I was told panic attacks, hypochondria, nothing wrong, maybe your hormones, you're an enigma, all kinds of shit. It took a switch of insurance companies and I was finally able to get my cardiologist to plug me in to a 30 day monitor. We caught the damned arrhythmia on day 17. I called the monitor in (over the phone) and then the nurse called me back, and the first thing she said was "He said to be sure to tell you you're not crazy. It's something." Fortunately a relatively benign something, though it's bothering me a lot lately. I wish you the best with this challenge, and hope that you and your doctors can find a treatment protocol that gives you some relief. FishyGirls last blog post..Blocked

By: Hypersensitive | Sleepless Nights

Hypersensitive | Sleepless Nights — Sun, 26 Apr 2009 13:27:18 +0000

[...] know what a diagnosis after so long gives you? It gives you a hyper-awareness of your body and what you are actually [...]

By: achelois

achelois — Sun, 26 Apr 2009 05:36:55 +0000

I am pleased you finally have a diagnosis… I follow bendy girls blog and I also have ehlers danlos as does my daughter. Vindicated at last. I am not pleased that you have EDS just feel it may help you in interaction with the medical professionals. They will still need educating on the condition and there will be days when you feel like screaming at the lack of awareness of this debilitating illness. However, ulitmately us EDSER’s are strong in spirit and this keeps us going when the pain is relentless. With very best wishes from a virtual friend over the www who understands your journey more than you will ever know. Take care

By: Kathy

Kathy — Sun, 26 Apr 2009 04:58:10 +0000

I'm sorry to hear about your diagnosis, while being glad for you that you HAVE a diagnosis. All the best with managing it from here. Kathys last blog post..Achievement

By: Jientje

Jientje — Sat, 25 Apr 2009 18:19:36 +0000

I understand. My daughter has gone through this too, before they diagnosed Fybromialgia. They kept saying it was nothing too. Now that she knows what it is, it makes her feel slightly better too. Jientjes last blog post..Around the World in 80 Clicks. Mama ...

By: SusanB

SusanB — Sat, 25 Apr 2009 17:34:29 +0000

I’m so glad for you that you don’t have to feel so frustrated and alone with your pain anymore…I know that feeling of no one listening to you, no one believing that you’re ill, and I think it’s so sad that doctors won’t pay attention to you, and BELIEVE you, just because they’re not smart enough to find a diagnosis for you. Hooray for finding a doctor who got you some REAL answers!

Hugs.

By: MJPhoto

MJPhoto — Sat, 25 Apr 2009 11:28:54 +0000

Oh huge hugs to you MJPhotos last blog post..Photo Hunter: Protect (ion)