I took the dressing off Evie’s back this morning, in preparation for a bath. Looking at the hole where someone stuck a needle into my baby’s spine – it wasn’t the smartest thing I’ve done. I pulled her singlet back down, zipped up her suit and held her close while I tried really hard not to think about the fact that they have to try that again.
We’ve had a good weekend, laid back and lazy. Amy and Isaac have been terribly naughty, a normal response to me coming home from somewhere. It’s how we know things are back to normal. Well, sort of.
I bathed my baby, washing the hospital sweat and dried blood off of her, and she slept and twitched and slept some more. We snuggled and for a while, things were okay.
Tomorrow, we take her back to the hospital, to hopefully find out what the plan in. We’re waiting for the teams at Melbourne to decide what they want to do with her, but that won’t be until mid-week.
It’s all up in the air and I don’t deal well with that.
In the meantime, Nathan and I have spent the weekend researching babies and seizures and everything else we can find, only to discover that not much is actually out there in the way of information about babies with focal seizures. We did discover that it’s possible her brain is just too tiny to show seizures on the EEG however, and we’ll go in tomorrow with this information.
Wish us luck Internet. It’s going to be a big week.
In the meantime, Evelyn is imitating a gingerbread man. Or a butterfly – depending on what member of my family you ask.
[Swaddle from Love To Dream, who sent it to me obligation free. It’s pretty cool and Ev likes it, so I thought I’d mention it in case anyone needs a swaddle for a baby. Soft, too.]
Comments
27 responses to “It’s going to be a big week.”
Sending enormous emounts of love to you and your baby girl. Limbo land is a scary place to be – I hope they have some answers for you soon xx
Enormous emounts? Lets try A-mounts!
She is such a beauty. Get well soon darling girl, and I’m thinking of you Veronica
We’ll be sending every good thought to you tomorrow and for the days ahead. My girls ask every day how baby Evelyn is doing and we’re all hoping so hard for answers and plans for you. And if they need to bring you to RCHM for assessment … I hope you know we would be only too happy to provide whatever you need (accommodation, transport, an unending river of chocolate etc)
Thank you
A bucket load of luck sent from the Woogs xx
Wishing you grt the answers you need very soon and that your little one comes to full health just as quickly.
I’m crossing every extremity on my body for you guys. Wishing you fast and thorough answers.
By the way, what a trooper Evelyn is, how does she manage to look so CUTE through all this?
Hoping you find out answers soon. Sending good thoughts your way.
I know many of us are reading and checking for updates, sending good thoughts and/or praying. I don’t know why this process is so slow… it just seems like forever and has to be so hard for the whole family. 🙁
I’m reading and following this and hoping so hard for the best for all of you. Just wanted to let you know one more person across the world is sending optimistic thoughts your way.
Good Luck! Happy Luck! Divine Luck! Love Luck! Health Luck! Sweet Luck! Hugs Luck! Kisses Luck! Butterfly Luck! Gnome Luck! Teddy Bear Luck! Four Leaf Clover Luck! Rainbow Luck! Charmed Luck! Rabbit’s Foot Luck! Number 7 Luck! Lady Luck! Fairy Luck! Cricket Luck! Chinese Bat Luck! Elephant Trunk Up Luck! Frog Luck! Goldfish Luck! Every kind of luck in the Universe Luck! Wishing them all for baby Evelyn and you and your family! Saying prayers for you all too just in case all that luck needs an extra kick! 😀
Oh you have made me smile 🙂
and from yet another part of the world…sending positive thoughts your way, she’s really beautiful and so lucky to have such a great mumma – stay strong xx
Oh my goodness, I had no idea all of this was going on! Hope your precious little Evelyn comes through this big week with a big tick of success and that you too survive it with your sanity intact. Will be thinking of you xxx
PS love the swaddle suit, if it works I’ll put it on my shopping list for bub number 2!
Thinking of you constantly. Big hugs, love and strength for a huge week. Trusting some answers will evolve XX
Just checking in to see how you are faring today. and sending love.
She is so cute all swaddled up, what a great wrap idea.
Good luck today, many prayers for you.
Massive loads of strength, clarity, hugs and love to you all V. xxx
Wishing you all the very best for this week. Hope you get some answers
My message to you is the same as Carmen’s. Thinking of you guys heaps.
G
Hope you get some answers this week or a plan xo
I hope you guys get the answers you need. Soon.
Definitely a butterfly. Thinking of you constantly.
Heyyyy hope you update soon! Think of you guys all the time and wondering how you are doing so hopefully you or Mum can give us and update even if it just says all is the same. (hug!)
Hope all has gone well, sweetheart. Love to you all xxx
Wishing you luck. She is so sweet…and I can totally vouch for those swaddles. They worked a dream with my second x