Ah Internet, so much has happened since I last wrote here. We brought Evelyn into emergency yesterday morning, knowing that the Paeds team had been appraised of her condition and were expecting her arrival. By 5pm she had been transferred up to the high dependency paediatric ward, for observation and testing.
So far she’s had lots of blood drawn and an EEG, which have all come back normal.
The concerning thing at this stage is how much she is sleeping. I guess she’s averaging around 22 hours of sleep a day, which is ridiculous when you consider this blog is called Sleepless Nights.
Now we have to start testing for the really rare things that can cause seizures and sleepiness. She will have an MRI in the next day or so, as well as a lumbar puncture and another whole lot bloods. There will be testing for chromosomal abnormalities, as well as for rare metabolic disorders.
We’ve got hoof beats and we’re now looking for zebras.
She’ll be in the paediatric ward for another few days, while her doctors here liase with the paediatric neurologists in Melbourne to get their opinion on a course of action for Evelyn, regarding possible medications and treatment.
Until then, we’re waiting. Waiting for tests, for results, for Evelyn to stop sleeping quite so much and stop twitching.
Waiting.
Oh, love. All good and positive thoughts being sent to you from me. I wish, I wish, I wish there was something I could to help. My tears will surely add to the weight of hope, love and good wishes you are already receiving. xxx
Oh love, wishing there was something I could do or say to ease the worry. So very glad you are in good hands, sending loads of love and prayers your way. xx
Oh hugs. I really hope they find an answer soon.
Thinking of you all.
I was worried because you had been so quiet.
Hoping for some answers soon.
Lots of love
I’m glad the doctors are on this for you. Wishing you some answers and good news very soon.
Thinking of you all – hope you get some answers and some help for Evelyn really soon.
Aww hun, all good thoughts and prayers come to Evelyn and your family xx
Thinking of you and your family. Hugs to you all as you wait for answers. Praying that the answers you receive will be ones that can be dealt with swiftly and successfully. xxx
Thinking of you all.
Can only imagine how hard this all is for you all.Will be sending many good thoughts out to the universe for you.Warm supportive hugs.xx
Oh love, thinking so many good thoughts for the little one.
Wanting and wishing all to be well. hugs xxoo
Thinking of you , as you wait and no doubt worry more. I hope the answers are easy to fix.
When clicking “liked” I DONT like this at all…I dont LIKE that you have so much to bear…I dont LIKE that Evelyn is unwell, I dont LIKE that she has to endure so many tests. But I do LIKE the fact that you are there with her and being the super mumma bear that you are and I hope you get some answers soon xxx
Thinking of you xx
Oh! Thinking of you and your family and your beautiful girl. I hope you get answers soon x
Evelyn’s getting all her sleep out of the way now, so that once she’s mobile she can stay awake for two full years without even a nap. Babies are sneaky like that.
Seriously, I hope she’s fine, I hope all tests show something easily fixed.
My heart goes out to you, Veronica. It’s terrifying when there’s something ‘wrong’ with your baby. I’m going to ask my Christian friends to pray for Evelyn, and I’m sending you love and hugs and cups of tea. X
Oh Veronica. Big big love xoxo
Thinking nothing but positive thoughts xx
Thinking of you Veronica – hope you find some answers soon x
so sorry Veronica, we went through a tough time with my oldest niece … who is now a beautiful happy 25 year old! hope it’s figured out and dealt with so Evelyn can return home and go about being a part of a beautiful family. xt
Oh Dear. I hope things start improving soon.
Sending love.
Sorry to hear everything you’re going through, I hope they get to the bottom of this soon and get the little darling sorted. Best wishes x
Sending all my love x
Sending best wishes and healing thoughts across the country to you and your gorgeous bub.
Thinking of you and Evelyn, and keeping all digits crossed that she’s okay.
Oh sweetheart! I’ve been hiding from blogland for the last few days and I come back to this! I really hope there’s a treatable and known reason behind this for Ev’s sake and yours.
All our love xxx
They’re consulting with people in Melbourne? Surely that is not usual, is it? I hope they have answers soon and everything is ok at home in your absence.
Sending love and gentle hugs, thinking of you all and hope you have answers very very soon. xxxxx
Hey, V. Glad you’ve got the process of diagnosis started and that the consultation with Melbourne has started. Baby jackets going in the mail today, finally. Email heading your way. X
Sending all our love, thoughts and positive healing vibes to you, your family and your precious little girl. All the best K xx
Oh hun, i’m sending some positive thoughts to you and your princess (as well as the rest of the fam)
Sending prayers and good thoughts your way – wish I could just lean over and give you hugs little mama!
Thinking of you Veronica and Evelyn xx
I’m a bit out of the loop as to all that is happening with you girls as we are still dealing with stuff too post Jonty’s birth. We both should be home enjoying our babies instead of doing things like this 🙁
I hope the tests shine some light on the situation. I’m going to be with you girls in
spirit while I’m having my tests too.
Lots of love Fee xx
My thoughts are with you all, big hugs xxx
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