Apparently, my baby sleeps too much. Don’t you wish you had my problems?

Ah Internet, so much has happened since I last wrote here. We brought Evelyn into emergency yesterday morning, knowing that the Paeds team had been appraised of her condition and were expecting her arrival. By 5pm she had been transferred up to the high dependency paediatric ward, for observation and testing.

So far she’s had lots of blood drawn and an EEG, which have all come back normal.

The concerning thing at this stage is how much she is sleeping. I guess she’s averaging around 22 hours of sleep a day, which is ridiculous when you consider this blog is called Sleepless Nights.

Now we have to start testing for the really rare things that can cause seizures and sleepiness. She will have an MRI in the next day or so, as well as a lumbar puncture and another whole lot bloods. There will be testing for chromosomal abnormalities, as well as for rare metabolic disorders.

We’ve got hoof beats and we’re now looking for zebras.

She’ll be in the paediatric ward for another few days, while her doctors here liase with the paediatric neurologists in Melbourne to get their opinion on a course of action for Evelyn, regarding possible medications and treatment.

Until then, we’re waiting. Waiting for tests, for results, for Evelyn to stop sleeping quite so much and stop twitching.

Waiting.

Comments

38 responses to “Apparently, my baby sleeps too much. Don’t you wish you had my problems?”

  1. Alison Dennehy Avatar
    Alison Dennehy

    Oh, love. All good and positive thoughts being sent to you from me. I wish, I wish, I wish there was something I could to help. My tears will surely add to the weight of hope, love and good wishes you are already receiving. xxx

  2. Louisa Avatar

    Oh love, wishing there was something I could do or say to ease the worry. So very glad you are in good hands, sending loads of love and prayers your way. xx

  3. Sarah @fignutmum Avatar

    Oh hugs. I really hope they find an answer soon.
    Thinking of you all.

  4. Peskypixies Avatar

    I was worried because you had been so quiet.

    Hoping for some answers soon.

    Lots of love

  5. Sharon A. Avatar

    I’m glad the doctors are on this for you. Wishing you some answers and good news very soon.

  6. Kirsty @ My Home Truths Avatar

    Thinking of you all – hope you get some answers and some help for Evelyn really soon.

  7. Jess Avatar
    Jess

    Aww hun, all good thoughts and prayers come to Evelyn and your family xx

  8. Susan @ Reading Upside Down Avatar

    Thinking of you and your family. Hugs to you all as you wait for answers. Praying that the answers you receive will be ones that can be dealt with swiftly and successfully. xxx

  9. Cat@jugglingact Avatar

    Thinking of you all.

  10. Debyl1 Avatar
    Debyl1

    Can only imagine how hard this all is for you all.Will be sending many good thoughts out to the universe for you.Warm supportive hugs.xx

  11. dharawal Avatar
    dharawal

    Oh love, thinking so many good thoughts for the little one.

  12. Yvette Vignando Avatar

    Wanting and wishing all to be well. hugs xxoo

  13. Trish Avatar

    Thinking of you , as you wait and no doubt worry more. I hope the answers are easy to fix.

  14. Meegan MacQueen Avatar

    When clicking “liked” I DONT like this at all…I dont LIKE that you have so much to bear…I dont LIKE that Evelyn is unwell, I dont LIKE that she has to endure so many tests. But I do LIKE the fact that you are there with her and being the super mumma bear that you are and I hope you get some answers soon xxx

  15. sleepydwarf Avatar

    Thinking of you xx

  16. Becky from BeckyandJames.com Avatar

    Oh! Thinking of you and your family and your beautiful girl. I hope you get answers soon x

  17. river Avatar

    Evelyn’s getting all her sleep out of the way now, so that once she’s mobile she can stay awake for two full years without even a nap. Babies are sneaky like that.

    Seriously, I hope she’s fine, I hope all tests show something easily fixed.

  18. Toni Avatar

    My heart goes out to you, Veronica. It’s terrifying when there’s something ‘wrong’ with your baby. I’m going to ask my Christian friends to pray for Evelyn, and I’m sending you love and hugs and cups of tea. X

  19. Shae Avatar
    Shae

    Oh Veronica. Big big love xoxo

  20. Mrs Woog Avatar
    Mrs Woog

    Thinking nothing but positive thoughts xx

  21. Carli Avatar
    Carli

    Thinking of you Veronica – hope you find some answers soon x

  22. traceyb65 Avatar
    traceyb65

    so sorry Veronica, we went through a tough time with my oldest niece … who is now a beautiful happy 25 year old! hope it’s figured out and dealt with so Evelyn can return home and go about being a part of a beautiful family. xt

  23. Marita Avatar

    Oh Dear. I hope things start improving soon.

  24. Susanne Avatar
    Susanne

    Sorry to hear everything you’re going through, I hope they get to the bottom of this soon and get the little darling sorted. Best wishes x

  25. Glowless Avatar

    Sending all my love x

  26. Christie-Childhood 101 Avatar

    Sending best wishes and healing thoughts across the country to you and your gorgeous bub.

  27. Alison Avatar

    Thinking of you and Evelyn, and keeping all digits crossed that she’s okay.

  28. Marylin Avatar

    Oh sweetheart! I’ve been hiding from blogland for the last few days and I come back to this! I really hope there’s a treatable and known reason behind this for Ev’s sake and yours.
    All our love xxx

  29. Happy Elf Mom Avatar

    They’re consulting with people in Melbourne? Surely that is not usual, is it? I hope they have answers soon and everything is ok at home in your absence.

  30. Achelois Avatar

    Sending love and gentle hugs, thinking of you all and hope you have answers very very soon. xxxxx

  31. […] my daughter Veronica is in hospital with her youngest child, Evelyn and the medical profession are again searching for […]

  32. Watershedd Avatar

    Hey, V. Glad you’ve got the process of diagnosis started and that the consultation with Melbourne has started. Baby jackets going in the mail today, finally. Email heading your way. X

  33. K@DragonflyMumma Avatar

    Sending all our love, thoughts and positive healing vibes to you, your family and your precious little girl. All the best K xx

  34. Leila Avatar
    Leila

    Oh hun, i’m sending some positive thoughts to you and your princess (as well as the rest of the fam)

  35. Geri Johnson Avatar
    Geri Johnson

    Sending prayers and good thoughts your way – wish I could just lean over and give you hugs little mama!

  36. Fee @ Oh Gorgeous Baby Avatar

    Thinking of you Veronica and Evelyn xx
    I’m a bit out of the loop as to all that is happening with you girls as we are still dealing with stuff too post Jonty’s birth. We both should be home enjoying our babies instead of doing things like this 🙁
    I hope the tests shine some light on the situation. I’m going to be with you girls in
    spirit while I’m having my tests too.
    Lots of love Fee xx

  37. mrs d Avatar

    My thoughts are with you all, big hugs xxx