You can find the post about Ivy here.
Thankyou from the bottom of my heart to everyone who has reposted or blogged about Ivy. If I am so touched and thrilled, I cannot imagine how Tiff and David are feeling.
The list of people who have helped to spread the word so far.
Riayn @ Rainbow of Chaos
Jen @ Semantically Driven
Jothemama @ Infantasia
Hotmamaia @ The Pittsburgh Deli
Rikki @ Boogers, Kisses and Spilled Milk
WWS @ Walking With Scissors
Sarah @ Take it one gigantic, earth-shattering crisis at a time
Mad Woman @ Mind of a Mad Woman
Tash @ Fabric of Life
Lightening @ Lightening Online
Old Knudsen @ Old Bitter Balls
Patsy @ Ramblings From *While You’re Up*
Lou @ LouCeel
Maggie @ Maggie’s Mind
Amber @ Schmidt Family Blog
Lotus @ Sarcastic Mom
Barbara @ Barbara’s 366
Ree @ Hotfessional
I am a Tornado @ From Here to There and Everywhere
New Rose @ Draco’s Rose
Kate @ Picklebums
Feather Nester @ Feather Nester
Kat @ Just Kat Stuff
Martin @ Xbox4NappyRash
Badness Jones @ Badness Jones
Anne @ Met 5 Down Under
Hyphen Mama @ Mommy Needs 5 Minutes
Witchypoo @ Psychic Geek
Kim @ Frogpondsrock
Angella @ Dutchblitz
Marylin @ A Little Space For Me
Fe @ Fe – A Life
Sarah @ Redefining Perfect
Laurakim @ Ramblings of an Harrassed Single Mom
Jientje @ Heaven in Belgium
Myst @ From the Myst
Cellobella @ Red Sultana
Cat @ Fitcatblog
MiscMum @ Miscellaneous Adventures of an Aussie Mum
Lilacspecs @ Lilac Coloured Glasses
Sherry @ It’s Sherendipity
Jenty @ Jenty’s Ramblings
Missy B @ Brockmann Adventures
Holly @ Are you in the Beyond? I think you are.
Jenni @ Oscarelli
Mrs. C @ Homeschool and Etc
Jen @ A2EatWrite
Suzie @ Up The Hill Backwards
Crystal @ A Little Slice of Me
Angel @ Passionate Chaos
Jeanie @ Jeanie in Paradise
Eric @ Ruminations of a Small Town Mountain Boy
Alexa @ Flotsam
Mr. Lady @ Whiskey in my Sippy Cup
Gina @ Stumbling and Bumbling
Desi @ Desi’s Two Cents
If I have forgotten anyone, let me know and I will add you to the list.
Also, the Lady who calls herself Speakneasy who posted about this on an Ebay Forum.
KareyM from Mackin Ink who added this to Kirtsy
SarahJo who posted on CafeMom about it.
Thankyou. You guys are amazing.
****
The signature count as I write this is 611. Still, we need more. We need these doctors to sit up and take notice.
****
UPDATE:
I spoke to Tiff (Ivy’s Mum) this morning (via email) and she mentioned that she had received a series of emails from the blistering Specialist that Ivy saw way back in January. Someone had forwarded this doctor the post about Ivy.
She has given Tiff some ways to push the IVIG application and she will be speaking to Ivy’s Paediatrician on Monday about it.
We also got a comment from Molly, who is the CEO of the International Pemphigus Foundation. She says,
Dear Ivy and your family:
I am the CEO of the International Pemphigus Foundation. We provide personal support through Peer Support Counsellors and with forums and discussion groups worldwide to help people cope with the day to day as well as other lifestyle difficulties such as insurance, wound care, etc. Visit our web site at www.pemphigus.org for lots of information. If you click on the “Our Community” tab you can login and have access to all of our community support, including phone and email for a support network leader in Australia named Julian.
In addition, we have some resources that may be able to give you some scientific research evidence and publications to support your discussion for the need for IVIg medical coverage for Ivy. I probably have a contact for you to talk to in that regard as well if you want to send me an e-mail at Molly@pemphigus.org.
Finally, you’ll probably find a lot of support and encouragement if you sign on to the discussion group. I will post your blog entry there, as well as on my blog at CEO.pemphigus stunt work. Good luck to you all and keep in touch.
Comment was left on Barbara’s post. Thankyou so much to her for passing it on.
This CEO was the person who forwarded the post to the blistering Specialist. Said Specialist is on the board of the Pemphigus Foundation.
We have made some of the doctors listen to us, now we need to make them sit up and really take notice. Please, keep passing on the news about Ivy and get everyone you know to sign the petition.
This blogging community is amazing. I honestly just want to hug every single one of you.
Thankyou.
Updated again:
We made the front page of the petition site where Ivy’s petition is hosted. It shows the top 10 most active petitions, Ivy’s is #10. Please don’t give up now.
Thank you everyone, from the very bottom of our hearts as well. We are so bewildered, amazed, in awe and astonished that so many people would put themselves out there to help us.
Thank you Veronica. For everything.
I posted about the issue as well (I’m in Belgium so maybe I’ll get some different resources from over here). I’m amazed and so happy for Tiff that there has been such a response to this. You’re amazing for making this happen. All my best to Ivy and her family.
Lilacspecss last blog post..Dead Beat
I have a post going up about the issue as well (I’m in Belgium so maybe I’ll get some different resources from over here). I’m amazed and so happy for Tiff that there has been such a response to this. You’re amazing for making this happen.
Lilacspecss last blog post..Dead Beat
you forgot me hun.. 🙁
i voted and so did bjorn..
i just dont have enough pc skills to put it on my blog..
Tazs last blog post..her favourite facial expression atm..
You’ve done a great thing here Veronica.
Wonderful.
Xbox4NappyRashs last blog post..If I may…
Ugh, wordpress emails were playing up and so far most of these comments haven’t made it to my inbox. So sorry if I haven’t replied.
Lilacspecs, I can’t find your post?
wow! Great work…. you’ve done an amazingly wonderful thing, and I am so pleased I could help in some small way. I think I stumbled your post too.. I think I did…. though something odd happened so it may not have worked so might try again now….
katefs last blog post..Flickr Friday – Blue
I have a post on this scheduled to go up tomorrow morning.
I am praying from the bottom of my heart that this helps and Ivy can get her IVIG, and I’m not normally a pray-er.
*tears streaming down face*
YOU Veronica are amazing. YOU are the one who got it all going!
I am so impressed that the gears are turning in a positive direction. Little Ivy and Tiff and Davi dare no longer fighting alone.
So So wonderful.
Hyphen Mamas last blog post..Your Empathy is NEEDED
Wow!! What a fast reaction!! I really really hope that this means she will get the treatment 🙂 Praying hard!
You left me off too btw 😉
Jentys last blog post..Bradley’s first sports day
Thank -you- Veronica for bringing this to the attention fo the blogging world. 🙂
Cats last blog post..A plea
Read you post, signed my name, wrote my own post and linked up here. I only hope I can send more traffic this direction.
Missy B.s last blog post..I know…I know…
Well done on being the mover behind this. I have been too busy wallowing in my own misery of late to take note of blogworld – and so only realised this all happening this morning.
I have blogged it (http://jeanieinparadise.blogspot.com/2008/09/using-my-dq-title-for-good-not-evil.html) – and good luck and congratulations.
jeanies last blog post..Head not above water (but not face down in the muffin mix)
It’s fantastic that this has gained the attention it has.
jens last blog post..Please help Ivy
Fabulous – FABULOUS!
Sarcastic Moms last blog post..I thought it would be harder. Haha, I said… oh, nevermind.
Oh, I wanted to mention that ANYONE on twitter should Tweet about it and link to the petition!!!
Sarcastic Moms last blog post..I thought it would be harder. Haha, I said… oh, nevermind.
It’s amazing. You’ve done a great deed, kiddo.
That is fabulous news!!! I LOVE that there is something we CAN do and pray that it will make a difference.
Lightenings last blog post..Netball
Now the whole world knows how special you are. *HUG*
lceels last blog post..Out of gas
I’m thrilled that this issue is getting so much attention. It’s really wonderful. 🙂
WWSs last blog post..Ivy Girl
Veronica – I was a little late to the party, returning from vacation and all, but I’ve got a post up as well. Best of luck to Ivy and her parents, and kudos to you for trying to make a difference, and convincing so many of us to do the same.
Jennis last blog post..Blogging Things That Matter
Please email me with permission to steal your IVY post with credit for my own blog. Have you thought of doing a clickable pic in your sidebar that would bring visitors to your IVY post?
Hugs and a big high five to ya.
Mrs. Cs last blog post..Being Frugal. Because I Won’t Spend $10 on Pizza.
AWESOME!!! Wow, so many blog postings about it, really amazing. And VERY good news about the people reached with all this talk of Ivy on the internet. I’ll create an email to send to my personal mailing list – I’ll get more people to sign.
Kats last blog post..My Husband Got Stabbed
Its up on mine too. On my side bar
Suzies last blog post..Dinner and Keanu
First – thank you for bringing this to everyone’s attention – you’ve done a terrific job.
Second – WOW – I am SO amazed at how on the ball you are with following all this in regards to who is blogging, etc.! Although I posted about it on my blog, I never thought to add my name, or notify you, or anyone for that matter. Only reason I even know you made the list of bloggers, is because someone visited my site directly from yours, and I thouhgt “Huh, how did that happen?”
Many thanks!
Wow. Just wow. The power of people who care is amazing.
Maggie’s Minds last blog post..Weekly Winners Sunday 9/7/08
We are over 1000!!! Veronica! That is so amazing!
I’ve got it up, too. I couldn’t find words any better than yours, so I just borrowed them exactly. Thanks again for doing this.
Mr Ladys last blog post..Help.
Amazing. I have tears.
Siobhans last blog post..Karma Kure and Bone Throwing
I am so happy that things are starting to happen. At least they are getting some more support, and any help I’m sure will be appreciated. I’ll post an update later in the week linking back to this post.
Great job
Eric S.s last blog post..Speedy I’m Not!
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