This photo makes me happy. Five generations of women (plus Isaac) all together in one photo.
Author: Veronica
-
Heartbroken.
We called into Nan’s house today to pick up some things I had left behind when I was living there.
Coat hangers.
Some books.
My leaver’s dinner dress.
As we pulled into the driveway and parked, Amy looked at me happily.
‘YAY! YAY! MyNanny is not died! We go visit!’
I looked at her, with tears in my eyes.
‘I’m sorry sweetheart. MyNanny did die. We’re all still very sad.’
‘Oh.’ She said and went quiet.
She didn’t ask to come inside. She didn’t ask where MyNanny was.
(MyNanny was Amy’s name for Nan. Nan was chuffed, she was the only Nanny with a special name)
For the first fortnight after Nan died, Amy told us that MyNanny is in St Johns. We corrected her, saying that MyNanny died and we were all very sad.
She doesn’t mention St Johns anymore. Today was the first time she had mentioned anything about dying.
I know that it’s turning around in her brain as she makes sense of what died and dead mean. I know that we’ll probably be having plenty of conversations about Nan in the future, as Amy works it out.
It doesn’t make me any less heartbroken though to have to tell my baby girl that her Nanny is not going to come back. I cry every time I think of the joy on Amy’s face when she thought we were going to visit Nan. I cry that Amy went silent so fast and that she understood in her own way.
I cried a lot this afternoon.
It’s been a month.
-
Sometimes, the silence is deafening
Yesterday morning, Amy woke up before I did.
Silently, she climbed over her bedroom gate and into the lounge room. She then climbed over the gate into the kitchen, where she found some banana cake. She grabbed the cake and climbed back into the lounge room and then back into her bedroom. So quietly that we didn’t even wake up.
When Isaac woke up at 8am, I found Amy sitting in her bed with a book and cake.
She’s definitely my daughter.
This morning, while I was laying down in the bedroom feeding Isaac and talking to Nathan; Amy climbed the gate into the kitchen again.
This time, she grabbed herself a bowl and poured herself a bowl of cornflakes. She added sugar, lots of sugar and when I emerged from the bedroom, she was waiting for me to open the fridge and pour the milk.
Remind me why I have a gate into the kitchen again?
-
Sleep and Toys
Things Isaac did just do:
Blew raspberries on my boob.
Got all excited and tried to eat my chin.
Smiled and goo’ed.
Things Isaac did not just do.
Feed.
Sleep.
It’s past 11pm. How is your day going?
***
I cleaned out my toy cupboard today. It’s looking a little … sad. Three toys that vibrate and one of those I won’t use for anything other than shoulder and back massage. (Why? THIS is why.)
Do you think if I asked nicely Eden Fantasys would send me some more stuff to review? Cos you know, I wouldn’t mind. Would you?
***
Isaac’s seizure, blah blah blah. I’m done researching. There is scary scary shit out there that causes seizures in babies with Ehlers Danlos Syndrome and I just don’t want to think about it anymore. LALALALALALA.
Fuck you research.
I’m waiting on a phone call with a date to have Isaac suffer through an EEG.
Until then, you know as much as I do.
He hasn’t had another one, so that’s one good thing.
***
Panic attacks.
How normal are they?
Because damn if I’m not having to remind myself to breathe as everything closes in on me and my heart races and oh my fucking GOD.
I’m sick of them.
They’re grief fueled, but still. They can go away now.
***
My baby is still not sleeping and YES, I KNOW I haven’t had anything decent to say lately. But, you know.
How are you?
-
Well now
A few of you already know this, but Isaac had a seizure on Thursday. Just a little one, but a seizure nonetheless.
He had been refusing to nap and finally (FINALLY!) I got him to feed properly and he fell asleep at my breast. A few moments later, he started to shake. Badly. His head went from side to side and his body started to flail.
I thought, this isn’t normal. This is not just him dreaming, holy shit, Isaac!
I stayed very calm. I cuddled him and 40 seconds later he was coming out of it. His eyes opened and he looked at me, but he was still dazed. He snuggled back down, fell asleep for another 2-3 minutes and then woke up, bright as a button and happy as he could be.
Or you know, as happy as a napless baby with only 5 minutes of sleep under his belt could be.
SO.
Yesterday, I rang our doctor to ask for an appointment. On discovering why I wanted an appointment (‘My 6 month old BABY had a SEIZURE and I want to see someone TODAY PLEASE’) they requested that I head down to emergency with him to be seen by a Paediatrician.
Insert big sigh here.
I KNOW he needed to see a Paed, but sitting down at emergency all day wasn’t going to be fun.
And it turns out, I was right. It actually kinda sucked. We sat there all day. ALLLLL DAY.
Eventually, after Isaac gave a urine sample (Yay Nathan on the catch of a lifetime! And on Mum for spotting it starting. Me? I was taking a break from the penis watch) and they looked at him and listened to him, and hours later they sent us home.
Isaac was pronounced ‘Much too well to come up to the Paeds Ward and potentially catch everything going around up there. However…’
However.
They want to see him as an outpatient in the next few days for an EEG to test for epilepsy or any other seizure causing things. Then they want to see him in the Paeds clinic for a follow up. With the family history of epilepsy (Nathan’s mum has epilepsy) and the family history of Ehlers Danlos Syndrome which can have seizure like ‘episodes‘ as a symptom, they’re keen to investigate.
We’re also to take him straight back to emergency if he has another seizure. Joy.
I swear, this son of mine is determined to make me grey.