There are things you don’t want to hear when you go to the doctor.
Like – You have the back of a 60 year old. When Nathan is only 28.
His back is bad. Really bad.
There are arthritic changes, a bulging disc, some compressed discs, bone spurs, narrowing of the nerve canals and degenerative issues.
Never gonna get better kind of bad.
Sure, loads of physio should help in the short term, but as far as I remember, nothing can be done for bones that are arthritic, or bones that are breaking down.
***
I’ve been seeing a Gyno for my insane periods and heavy bleeding/cramps like labour pains. That’s the backstory.
I went to see them yesterday, to follow up on how the trial of a contraceptive pill went.
[paraphrasing, as best I can, because somehow, telling you without the conversation added is too hard]
‘So, how did the pill go?’
‘HA! Badly. Really badly. I came off it early because it was bad.’
‘Bad how?’
‘Mood swings, depression, increased dislocations, etc etc. Bad.’
‘Well, in situations like yours, we really like to try the contraceptive pill.’
‘Yes, but the pill doesn’t agree with me.’
‘I can see. And you seem very against trying it again.’
‘Yes.’
‘So, we’d like to try the Mirena.’
‘No.’
‘Huh? No?’
‘I have anecdotal evidence to tell me that the mirena would be really bad for me’ [he tries to cut in] ‘and YES, I KNOW that the progesterone supposedly doesn’t leave your uterus, but really, my body is so sensitive to progesterone that I don’t want to trial the mirena.’
[he looks very spluttery]
‘We would like to try the mirena. If you don’t want the mirena, then we’re looking at things like gonadatropins and they’ll make you gain lots of facial hair and will deepen your voice and -‘
‘Well I don’t want to trial those either.’
‘If you’d try the Mirena, we wouldn’t have to look at gonadatropins.’
‘I don’t want the Mirena.’
‘Gonadatropins will make you gain a lot of weight… wait, I’m going to consult with my boss.‘
[A few minutes later, his boss- the doctor I saw last time enters.]
‘Hi Veronica, so you trialled the pill?’
‘Yes. And it was awful. I stopped it after 3 weeks because I couldn’t cope anymore.’
‘What happened?’
‘My joints fell apart, it felt like I was walking on a wobble board instead of a pelvis, I was angry and sad and it was horrible. So I stopped.’
‘Good, that’s what we discussed. So really, our next option is the Mirena.’
‘I don’t want the Mirena.’
‘It’s really the best option.’
‘I don’t believe it’s the best option for ME. I think it will make my joints worse and YES I KNOW the progesterone won’t leave my uterus, yada yada, I’m not willing to put a coil into my uterus to just see.’
‘We’re really running out of options here, the Mirena…’
‘No. I am opposed to IUD’s on ethical grounds too and really, I don’t think poking my internal organs with metal and making them angry is going to make me feel better on the whole.’
‘Ethical grounds?’
‘Yes. I don’t like how they work.’
‘Do you KNOW how they work?’
‘I know a plain IUD doesn’t prevent ovulation or conception, it just prevents implantation. I know the Mirena with it’s progesterone generally prevents ovulation, and also that it prevents implantation in the event that conception occurs. I don’t want the Mirena, I don’t want something I can’t stop using myself if I get bad. I can’t afford to wait weeks until I can get in here to be seen and fixed and HONESTLY, I’ve been on the wrong side of side effects and statistics for so long, I’m not prepared to mess around with things.’
‘Right. Well then.’
‘Can we try something to help with the cramps and pain instead of trying the mirena? ‘
At this point, I feel like I’ve been fighting the doctors to get ANY sort of health care that doesn’t involve inserting a foreign body into my uterus and leaving it there. Not to mention the absolute shock on their faces that I wouldn’t accept the Mirena as ‘the best possible thing’ [all hail the fucking copper coil] and wouldn’t be badgered into it. Not even with the ‘you’re gonna grow facial hair and get really fat’ scare tactics that the original doctor was using. I mean, fuck.
Eventually, the doctors agree on a course of action, medication wise and send me away with a script.
45 minutes later, I get to read all about the reasons I should not take a drug to help my blood clot.
Like, don’t take the drug if anyone in your immediate family has had a blood clot. Both Mum and Nan have had blood clots.
Don’t take the drug if you have bruising, especially bruising without trauma. Hello fucking EHLERS DANLOS.
Don’t take the drug if you have irregular periods. Um yeah, that’s part of why I’m seeing a Gyno. I’m 21, I’ve had periods since I was 12 and I’ve had 2 kids, my periods should be fucking regular. They aren’t.
I’m just so tired of having to fight the doctors for things that might help. Tired of them not asking questions they should before they prescribe something. Tired of being treated like a disobedient child, for not falling into line and letting them do whatever ‘they think best’.
Tired of feeling like these bandaid fixes don’t do anything towards working out why my body isn’t doing regular periods, why I bleed for 10-12 days each period, why the periods feel like labour pains, and why I’m having hot flushes.
Tired.
I’m booking an appointment with my regular GP to discuss the new tablets before I even think about taking them. Somehow, knowing how my body works and which side of the stats I fall on, I’m a little concerned about taking something to promote blood clotting.
On the upside, there was a Med Student there during the whole appointment and I got ages to talk to her about Ehlers Danlos while the doctors were consulting in the other room. She was lovely and interested to know how EDS presents in normal cases.
So good deed done. Even if I still want to bang my head against the wall.
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