It’s going to be a big week.

I took the dressing off Evie’s back this morning, in preparation for a bath. Looking at the hole where someone stuck a needle into my baby’s spine – it wasn’t the smartest thing I’ve done. I pulled her singlet back down, zipped up her suit and held her close while I tried really hard not to think about the fact that they have to try that again.

We’ve had a good weekend, laid back and lazy. Amy and Isaac have been terribly naughty, a normal response to me coming home from somewhere. It’s how we know things are back to normal. Well, sort of.

I bathed my baby, washing the hospital sweat and dried blood off of her, and she slept and twitched and slept some more. We snuggled and for a while, things were okay.

Tomorrow, we take her back to the hospital, to hopefully find out what the plan in. We’re waiting for the teams at Melbourne to decide what they want to do with her, but that won’t be until mid-week.

It’s all up in the air and I don’t deal well with that.

In the meantime, Nathan and I have spent the weekend researching babies and seizures and everything else we can find, only to discover that not much is actually out there in the way of information about babies with focal seizures. We did discover that it’s possible her brain is just too tiny to show seizures on the EEG however, and we’ll go in tomorrow with this information.

Wish us luck Internet. It’s going to be a big week.

In the meantime, Evelyn is imitating a gingerbread man. Or a butterfly – depending on what member of my family you ask.

[Swaddle from Love To Dream, who sent it to me obligation free. It’s pretty cool and Ev likes it, so I thought I’d mention it in case anyone needs a swaddle for a baby. Soft, too.]