Gate leave, man, it’s awesome. Last night after a long day in hospital, Evelyn and I came home and slept in our own bed. Despite still being in hospital, getting to go home every evening is saving my sanity.
We’re still getting into the routine of things. Eve had lost weight at admittance yesterday, and the speechie has noted a few things going on with her mouth when she eats, so hopefully a plan is on the way.
We’re probably going to repeat her swallow study, this time looking for what is going on further down her oesophagus, rather than just her swallow. Right now, Eve is complicated and we’re still feeling our way forward.
She’s asleep right now, after I walked miles up and down the corridors, with her in her pram. She’d refused to sleep in her cot, and I was grateful, so grateful,for not being tied to the ward, for being allowed to walk, for our ability to leave the climate controlled paeds ward.
That’s really all that is happening right now. I’m tired, and not looking forward to the rest of the week, but I’m hopeful that this will be the beginning of getting her issues sorted.
And you know, this morning she smeared an entire tub of pureed apple and blackcurrant all over herself, so that was also a bonus.
Hugs! Continued prayers! I’m so glad you could write and update. 🙂
I just hope and hope, you get lots of answers. It is good to know how you are going. Thinking of you both,wishing you well.
Hoping this will help unearth some answers and help for Eve to start being able to eat more hon. *hugs*
She’s supposed to smear it inside her mouth and hopefully swallow it….
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