When you’ve got a child who won’t eat, everyone is full of advice and admonitions that it’s all normal. Which it is, in 99% of cases. Toddlers are insane creatures who want to live on tina wafers and air, with the occasional cracker or chicken nugget thrown in.
But Evelyn’s issues aren’t like that.
After a huge amount of success with our new therapies, we were working on getting her to eat enough at each meal. Slowly, the amounts were increasing from one teaspoon through to 100g, through to 150g, four times a day. Sure, mealtimes required more planning, a certain amount of structure and we had things we did that worked – but she was eating. Albeit, only smooth purees, but who cares? Anything can be blended.
But a week ago, Evelyn had a pain reaction during swallowing. All our work making food a safe fun thing, and our high chair a safe place went out the window. Evelyn doesn’t trust food. All my promises of “this won’t hurt” doesn’t mean a thing when neither of us believe it.
We don’t know why sometimes swallowing hurts. If we knew, maybe we could fix it.
So. Evelyn hasn’t been eating anything. Our medical team know about it, and they’re as upset at the big refusals as I am. Or maybe not as much as I am, because they don’t live with her. But they know, and they’re working on a plan.
It’s hard to not worry about her, and harder still not to obsess over everything she puts in her mouth.
Spoon food makes her gag violently at the moment, and spit it out frantically.
It’s hard, and I don’t know where we go from here. Current advice is to not push food, not to make a big deal out of it, and hopefully she’ll cut out the spoon refusal within the next week or so.
Until then, she’s eaten half a mouthful of watermelon today, and chewed on a variety of things that she didn’t deign to swallow.
How dare we expect her to nourish herself.
{ Comments on this entry are closed }