I fell off my chair, but it’s OKAY, because I am OKAY. My baby however, well, hmmmm.

by Veronica on May 13, 2013

in Evelyn, Seizures

Two days ago I sat down on my computer chair and leaned backwards, sinking further than normal. Thinking that it felt odd, I got off the chair and looked to see if for some reason, it was bent, or crooked, or somehow or other, new. Not noticing anything, I sat back down, leaned back and suddenly found myself laying flat on my back, legs akimbo, looking at the ceiling.

You know there is something wrong with your chair when your vertical self suddenly becomes horizontal when you least expect it.

Obviously I am okay, except that Amy laughed at me and then wasn’t much help when I had to contort myself into strange positions to get out of my predicament. Now I’ve had to steal my husband’s chair and it feels all wrong. It doesn’t tilt quite the way I like it and I’m left bundled up in the centre of the thing, trying to work out how to type quickly and easily, while also not getting stuck like a large spider in a too small space.

All of this is very First World Problems, which I know and understand, but I’m distracting myself from the week that was, and thus, you get to hear about my computer chair.

Plop. There I was, flat on my back, like I’d had a rug pulled out from under me.

Thursday, in the moments after my grandmother’s funeral, we hurried ourselves off to a Paeds appointment for Evelyn.

The short answer to “What happened, dear Veronica, tell us because we do love your baby so” is – we’re doing more testing.

Digression: Evelyn, when she was a vaguely preterm baby stuck in special care, bled beautifully, provided it was only a heelprick that we needed. Since then, she’s had plenty of cannulas and assorted other needle pokes and I am convinced that my baby does not actually want to part with her blood. And who can blame her really? Having needles poked into you is miserable enough without the blasted nurses then stealing the blood like vampires and taking them away. No. If I was Evelyn, I wouldn’t want to bleed either. But bleed she must and between you and me, Internet, I am dreading the next time we head into the hospital. End digression.

We’re now testing for neuromuscular diseases, because her tongue tremor is uncommon and concerning and Things Need To Be Ruled Out. Evelyn is also going to have another EEG, which is going to be Fantastic Fun when this child does not find things being placed on her head and stuck there with tape at all amusing. Also: Hair.

Needs must and all that, and in the middle of it all, I am stuck sitting on a computer chair that I Do Not Like and this is the end of the world.

Because when you’ve spent too much time reading about Neuromuscular Diseases, then obsessing over your chair just makes more sense than anything else.

Now excuse me. I have to go hug my baby.

Tegan May 13, 2013 at 12:52 pm

I snorted at the mental image of you flailing about on your back trying to get up from your broken chair. Sorry but I’m with Amy, it’s hilarious. #notsorry.
I hope that the vampires are able to get some answers. EEGs and hair suck balls. The sticky stuff takes forever to get out. Good luck with the tests and big hugs to you all.

Zelda May 13, 2013 at 1:11 pm

I am with the laughing at you flailing about falling backwards. The image is very amusing.

Blossom May 13, 2013 at 1:18 pm

I totally understand the chair thing,because being comfortable IS important

I sooo want them to get some answers for you and your sweet girl

Smoosh those cheeks from me

Fi @ My Mummy Daze May 13, 2013 at 1:44 pm

Being a parent is frightening sometimes. Reality is quite confronting. I don’t blame you for needing to laugh at yourself about falling off your chair for a moment. J needed an EEG when he was 18 months old after having a seizure. We were terrified, but it was no where near as bad as we thought the process would be. Being a child, they were very accommodating and patient. It did help that he was a bit older than Evelyn though. Good luck. Fi xxx

Di May 13, 2013 at 1:58 pm

And yet. Evelyn is more OK than not. Bind that thought to you, because she is.

Dorothy @ Singular Insanity May 13, 2013 at 5:09 pm

I hope the tests reveal some answers, or at least rule out some awful ones.

I also hope you manage to find a proper chair. Someone else’s chairs just don’t cut it.

Oculus Mundi May 13, 2013 at 7:05 pm

I have zilch to offer, but wanted you to know I am reading, caring, catching up, thinking of you all. xox

Kate May 13, 2013 at 11:42 pm

Please hug that smooshy baby from us as well….

river May 14, 2013 at 5:08 pm

I wish I’d been a fly on the wall when your chair went over with you in it.
Did you find out why it collapsed? Is it something Nathan can fix?

Marian May 14, 2013 at 7:01 pm

Yes heel pricks really suck, our girls were in hospital for 16 weeks and had them at least once a week. We have gone back now 3 times since to monitor their low phosphate levels. I’ve decided there’s a scale to needles immunisations: heel pricks: blood transfusions: IV antibiotics: PICC lines and lumbar punctures. Poor girls are still suspicious every time I touch their feet. But they are such troopers. Luckily so far our girls bleed well.
I hope they find some answers about Evelyn.

Denyse Whelan May 14, 2013 at 11:35 pm

Wishing that MissE was “all better” but know that’s not coming up just yet. Always in my thoughts V. Sorry about the chair… Eeek. It hurts! D xx

Linda May 16, 2013 at 4:36 pm

Just want to say thanks so much for your blog! I love reading each and every post! Love hearing how you are all going! I made my own little award if you are interested in having a look 🙂 Cheers, Linda
http://lrbritton.wordpress.com/2013/05/16/blog-awards/

Anne May 17, 2013 at 7:40 pm

Just imagining the chair mishap made me giggle … but I’m glad that you’re ok 🙂

Hope the testing goes smoothly and you get some much-needed answers for that beautiful little girl of yours 🙂

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