Still waiting. I haven’t stabbed anyone though, so BONUS. UPDATED***

I would just like to point out that I haven’t stabbed anyone today. Nor have I shouted (except once, when Amy was incessantly pulling on my pants to get my attention instead of USING HER WORDS and that, my friends, is justified shouting), or thrown any crockery, or had a tantrum.

I mean, considering the circumstances, I am being VERY CONTROLLED in the face of extreme stress.

If you’ve guessed that today is the day for Getting Shit Organised, you’d be right. Unfortunately it seems that Evie’s medical teams are all busy with other patients and emergencies and yada yada and so far, no one has returned my calls.

My twitching, it knows no bounds. Neither does Evie’s twitching, but hers is entirely different.

On top of her regular seizures, it has come to my attention that I just don’t think she can see anymore. Except for bright lights – I know she can see bright lights, they are the only thing she responds to visually.

The last time she smiled at me, properly, was a few days before we noticed her seizures. No smiles since. She doesn’t look at my face, she doesn’t track with her eyes, she doesn’t follow our movement around the house. All things that she was doing prior to the seizure activity. Now, nothing. She also doesn’t blink if you snap your fingers in her face, or flick your fingers at her eyes.

Nor did she blink when Isaac nearly poked her in the eye.

I sat down in front of her yesterday and tried to catch her gaze. It wasn’t until I spoke to her that she responded, by jumping out of her skin and looking offended.

There is something called Cortical Visual Impairment which can go hand in hand with seizures.

(And something even more terrifying that causes seizures and CVI together, along with a few other markers Evie has that we’re waiting on the test results for, but we’re not thinking about that possibility.)

I need my medical teams to call me back so that I can announce to them that Evie isn’t seeing things anymore. So that we can get things moving.

Instead I am wandering around the house, unable to settle, waiting for phone calls.

[I know my medical team is very busy with an entire ward of paediatric patients, so I’m not terribly grumpy that they haven’t called yet. I’ll ring again in a few hours and see if I can catch them them. Our main Paed (working hand in hand with the hospital) has a full list of patients this morning too, so he’s busy as well. I’m just impatient and grumpy. Also, worried.]

UPDATE: Spoke to our Paed. We’ve been told to take Evelyn back to Emergency. Wish us luck.