Cancer

On words, or the lack thereof

by Veronica on November 9, 2009

in Cancer, Grief

I can’t talk about it anymore. The grief, it is crushing and although I laugh and smile, I can’t breathe. Often, I have to remind myself to keep breathing, to keep moving, otherwise I’d be found, struck dumb with tears streaming down my face. Unmoving and uncaring.

I cope  by moving through my moments without thinking about it. If I consciously don’t think about her, then I can move through my day without hurting.

Then

something will happen.

And the enormity of what we’ve lost hits me like a truck with no brakes.

Loss is forever and I think that is the hardest part. That this is forever. There are no undos, no fixing this. I can’t make this better because I can’t bring her back.

I said after she died that I didn’t regret anything I had done or not done. That I was at peace with her passing. I told her I loved her lots on that last day.

I think I lied.

Because

I regret that she died at all. That we didn’t have longer. That she was in pain.

In the future, we will have a cure for cancer. It might not be for a hundred years, but in the future there will be a cure. Future generations will look back and wonder how we managed to lose so many people to cancer. They will wonder how we didn’t crack the code sooner, in order to save more lives.

But it will be like us, looking back on the invention of antibiotics. We know that we’re lucky, but we don’t realise how lucky we are. We’re not likely to die from a simple cut anymore. A puncture wound is not going to be our death.

In the future, Cancer will be like that.

I hope it is sooner than we believe.

But until then, we will support the research. We will donate money and time and good humour. We will do what needs doing, even if that means we hold the hand of a loved one while they’re dying.

We do this, hoping that in the future, our children’s children won’t have to go through it.

Because god knows, I wouldn’t wish cancer on anyone.

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Anxious

by Veronica on September 26, 2009

in Cancer, Grief, Headfuck

My breath catches in my throat and I’m breathing consciously to get through the moment. My heart races and the familiar feeling of anxiety settles deep into my chest. The world around me fades slightly as I focus inwards, on my own internal struggle to get this under control.

My focus shatters as Amy steps on Isaac and tips forwards onto her hands and knees crying, while he screams his displeasure at being trodden on. The dog bites the cat, who runs away knocking dishes off the sink.

Everything lands in a big heap at my feet and I’m left with scattered plates, screaming children and no sense of peace. The world continues on completely oblivious to me.

I pick up my children, comfort them, make Amy say sorry. I stand and swearing, I clean up the plates, dust off my coping strategies and just move forwards.

One step at a time.

***

I’m stressed is what I’m saying.

Quite a little bit.

The anxiety attacks are back with a vengeance, coupled with a complete inability to actually cope with anything.

I’m spending a lot of time swearing under my breath and stomping around the house.

***

I turn the music up loud to drown out the whining and scrub at the bench. If I can just get this clean then everything else will look better and ohmyfuckingGOD.The mess just keeps coming and coming and I’m not sure I could walk through the lounge room without breaking an ankle.

***

Just stop whining. Please, just stop.

You’re tired? Here, curl up on the couch with a blanket.

No, you can’t watch a DVD, you broke the DVD player.

You want a bottle? But you’re a big girl.

I know Isaac has a bottle, but he’s a baby.

Oh. You’re a baby now too.

That would explain the whining.

Can you stop sitting on me?

Please?

Amy, get off me. You’re hurting me.

OY! Don’t pinch me! What a naughty thing to do. Time out! NOW.

You’re sorry? I don’t care. We don’t pinch. Time out.

Now.

Time out.

Walk.

Now.

Don’t go boneless, I’ll just pick you up.

There. Sit there. 3 minutes. We do not pinch. At all ever.

Isaac! I know I’m ignoring you, that’s no reason to squeal.

You’re tired too? Well here, nap time.

Boobs.

You don’t want boobs? You want to look at your sister in time out?

Isaac, fortheloveofgod just feed already.

ARGH! No biting! You’re not hungry.

Bedtime.

You. Back in time out. I didn’t say you could move.

No whining. Stop it.

Sit.

Sleep.

Shutup.

Please.

***

I love my children dearly, but they’re very needy at the moment.

Like –

really needy.

And I’m not sure I can breathe, underneath this mountain of need they have.

***

I knew this would happen. The crash.

Nan died three months ago and for that three months I’ve been caught up in merely moving from one moment to another without thinking about myself. Just getting things done for this family of mine.

Caught up in the coping.

And apparently, the grief has caught up with me.

I miss her so fucking much.

So fucking much.

***

There is stress on top of stress down here and there are only so many balls I can juggle before things start to fall on my head.

***

So I’m turning up the music.

I’m putting one foot in front of the other.

I’m hugging my children.

And I’m letting myself grieve.

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Useless Books

by Veronica on September 21, 2009

in Cancer, Ehlers Danlos Syndrome, Grief, Headfuck

There is a bookshelf in my house. It reaches to the roof, tall and thin. It sits in a corner of the dining room, slightly wobbly but bolted to the wall to stop it falling over.

My father made this bookshelf, a few years ago, for Nan. He made it to cover a useless doorway, boarded over on the outside but visible and ugly on the inside. Shortly after it was installed it was filled with books, top to bottom. I used to stand and peruse the books, picking them up, hefting their weight in my hands, stroking their binding and then curling up with one to read.

Then Nan died.

And this bookshelf; the bookshelf my father made, got moved into my dining room along with all it’s books. The bottom four shelves still contain her books. Books that I used to read of a weekend, books she loaned me, books she was reading in the hospital before she died.

I can’t touch them. I can’t bring myself to stroke their spines anymore, let alone pick one up read it. There’s too much there, too many memories.

I look at the bookshelves and I have to walk away and remind myself to breathe. My stress levels rise and I start to shake. I have to walk away, leaving the books untouched and the stories unread.

I know it will get easier.

But.

Until then, it just sits there.

In the corner.

Wobbling.

***

I’m starting to get a little bitter. My anger is rising to the surface. Things haven’t been made easy for Mum and I in the last three months and there is still so much work left. The jobs stretch out on front of us, marking time until the house is sold. It’s never ending and never easy.

It’s been …. stressful. To say the least.

I’m a little bitter.

***

My shoulder clicks back into position before promptly falling out of it’s socket again. Electric signals sent down my fingers with alarming regularity reminds me that it doesn’t work properly, not anymore.

For that matter, neither do I.

***

Lileya from In The Fringes wrote:

There is a fine line between trying to look on the bright side and putting on a happy act.

and that is so true. That line, resonates within me.

Too often I put on a happy act.

I’m not okay. I’m sick and tired and my joints hurt and nothing stays put anymore. I’m grieving still. A lot.

And I’m sick and fucking tired of having my grief mean nothing because she was ‘only’ my grandmother. I’m sick of having my pain discounted because you can’t understand it.

I miss her everyday.

My joints dislocate everyday.

Every. Single. Day.

So fuck you Anyonetoblog. No really, fuck you. You can’t be bothered to see my side of it? I can’t be bothered to be nice anymore.

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Daffodil Day

by Veronica on August 28, 2009

in Cancer, Grief, Headfuck

Daffodil Day 3 years ago:

I was sitting in a hospital waiting room having irregular contractions. According to my dates, Amy was 5 days overdue. According to their dates she wasn’t due for another 2 days. I was big, heavy and uncomfortable.

My name called.

Come through.

An American doctor. He was brisk. I told him I was having irregular contractions and he offered to check my cervix. Or more correctly, he offered to have his medical student check my cervix so long as I didn’t mind.

Two checks later, it was ascertained that my cervix hadn’t jumped ship and gone for a holiday like the med student suspected. Nor had it gotten lost, she just wasn’t very good at checks yet.

I was pronounced 3cm dilated and ready to drop. Thrilled, I put my pants back on as the doctor told me he’d probably see me tonight.

We walked out of there happy, certain our baby was on the way.

***

One hospital floor down, Nathan’s father lay in a bed, having just been diagnosed with cancer.

***

We bought a daffodil pin that day, as well as a little yellow bear. Still a little shell shocked, we walked out of the hospital not knowing whether to celebrate the impending birth of our daughter, or cry for the diagnosis my father-in-law had been given.

***

Three years later my father in law is alive after undergoing intensive chemotherapy. It wasn’t easy, but then, cancer never is.

Three years later we’re getting things ready for Amy’s birthday. Despite being told I’d give birth that night, Amy hung around in there for another 8 days. We’ve got presents hiding in the closet and I’m trying to decide on a cake flavour. I’m counting sleeps until and hoping that things will just fall into place like normal.

Three years later I’m grieving my grandmother, a victim of a cancer she was never at risk for. She, who’d never smoked a day in her life struck down by lung cancer. Her second run in with cancer, leaving us broken without her. Stronger, maybe, but flawed. Always flawed. Grieving.

Three years later I’m not sure how I’m going to get through Amy’s birthday without Nan. I’ve spent so long coping and just doing what I’ve got to do that I haven’t taken time to cry or process anything. I’m starting to be very not okay anymore and I don’t know how to handle that.

Three years later I don’t have the time to grieve alone. These children of mine have wants and needs and their wants are mostly louder than their needs.

Three years later and the edge of my purse still has the daffodil pin stuck in it from so long ago. A pink ribbon has joined it.

Showing support for the people who suffer; the people who die.

It’s not enough, but it’s all I’ve got.

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Tired and Sad

by Veronica on July 6, 2009

in Cancer, Grief, Headfuck

Today was the first day since Nan died when we were back to a normal routine. Nathan got up at god-awful o’clock and left for TAFE (welding course) and I was left at home with the two children, one of whom is still sick and completely unable to be separated from me. Now, don’t get me wrong, I love snuggling with Isaac, but when it’s the 5th consecutive hour that you’re doing it and you’ve only had a few (non-consecutive) hours sleep, then it starts to get a little old.

My shoulder and lower back are complaining rather a lot at the extra 7kgs of badly distributed weight. Sigh. I feel old today.

Old and sad.

Sad and tired.

Nan was a huge part of my life. I catch myself thinking I’ll just ring Nan… and then, fuck. And then I cry.

***

When I rang Nathan that Wednesday morning to take me into the hospital, I stopped breathing properly. It was almost like hyperventilating, only not. I flew through a shower and getting the kids ready. Nathan walked in the door and we walked out of it 30 seconds later.

I didn’t breathe again until I hit that hospital room and Nan was still breathing. She looked awful, but that is part and parcel of cancer and steroids. She got quite distressed until David and I had hugged her. Apparently she’d spoken to Mum prior to her downhill slide and said that she needed to let Davey and I know that she knew we were there. She definitely managed that. I hugged her, laid my cheek against hers and told her I loved her.

We settled in to wait.

The waiting was the hardest part.

We took turns holding Nan’s hand and she had enough energy to occasionally give us a squeeze. Visitors came and went and still we sat. Talking, laughing, reminiscing, waiting.

Eventually Nan’s breathing got worse. She pulled her oxygen mask off and rolled onto her side. She opened her eyes and looked straight at her mother (Kath*) before closing her eyes again. Kath held one of Nan’s hands and I held Kath’s other hand and her shoulder. She gripped me like a drowning woman as her daughter started to slip away.

Mum said ‘You can go now Mum. You don’t have to stay here for us. We love you.’

I echoed ‘Yes. We love you Nan.’

Her breathing slowed and then stopped completely.

It was peaceful. She was done fighting.

At 2.10pm on the 24th of June ’09, my grandmother died, surrounded by family.

*I’m calling her Kath for this blog post to prevent confusion. In real life, she is just Nan.

***

I can remember everything about that afternoon, even down to how the room smelled and how it felt to clean the room afterwards. We organised clothes and flowers, books and magazines and then we left the room and Nan behind.

***

I think those first few days were easier to deal with.

After the funeral, the hustle and bustle died down and the reality of Nan’s death set in. I can’t ring her. I can’t visit. I can’t do any of the things I used to do on a daily basis. Nan was such a part of my life; to have her gone leaves me with a gaping hole and a pervading sense of sad.

I can still smell her perfume on the clothing she gave me before she died. I wander around the house and suddenly, I can smell her.

And it hurts because it’s not her and eventually, the smell will fade no matter how I try and preserve it.

***

I threw the last of the flowers out yesterday. The lilies that had been in her room withered and died. An empty coffee jar sits on my counter with no flowers left to fill it.

***

It’s the middle of winter. It’s cold and icy and horrible outside. I yearn for warm days and blooming flowers and sunshine that warms my soul as well as my body. I know that spring will come in it’s own time. I know that eventually the keen knife edge of hurt will fade. I know this.

This hurt is a wound that will eventually heal, leaving me with just a scar and memories. Knowing that this will happen doesn’t make the days in the interim easier though.

***

I’m a writer and I won’t appologise for ripping open my soul and leaving it here on my blog for you to read, even though I feel like I should be appologising for my lack of humour.

I hope that you can hold my hand and walk through this with me as I process it. That said, if you find it hard to comment, or can’t make the words come out right, don’t feel you have to comment profoundly. Simply knowing you’re reading still is enough.

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